Women Affected by Endometriosis: Their Anxieties and Coping Methods

IF 2.1 4区医学 Q3 HEALTH CARE SCIENCES & SERVICES

Journal of evaluation in clinical practice Pub Date : 2025-08-19 DOI:10.1111/jep.70198

Handan Özcan, Dilek Bilgiç, Enzel Köksaldi

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Abstract

Objective

This study aimed to determine the anxieties and coping methods of women diagnosed with endometriosis.

Methods

This qualitative study was conducted using a phenomenological approach. Sixteen women diagnosed with endometriosis were selected through criterion sampling. Data were analyzed using inductive analysis.

Results

The mean age of the participants was 32.62 ± 7.42 years, the mean age at diagnosis was 27.50 ± 6.87 years, and the mean age at symptom onset was 22.37 ± 8.13 years. Only four women had heard of endometriosis prior to diagnosis. All married participants who wished to conceive (n = 7) were diagnosed with infertility. Three main themes and nine sub-themes were identified: i. Emotions at the time of diagnosis (fear, anxiety, sadness, feeling bad, surprise, relief, numbness, feeling incomplete, and depression); ii. Anxieties related to endometriosis (pregnancy, chronic pain, inability to cope, ovarian damage, medication side effects, delayed diagnosis, lack of information, cyst rupture, and fear of inheritance by children); iii. Coping strategies (researching, avoidance, changing physicians, psychological support, regular check-ups, acceptance/giving up, family support, positive thinking, and oocyte freezing).

Conclusion

Due to the long-term nature of endometriosis treatment and follow-up, it is essential to closely monitor women and provide social and psychological support. Increasing awareness among the general public and health professionals, organizing educational activities, and promoting interinstitutional cooperation are recommended.

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受子宫内膜异位症影响的女性：她们的焦虑和应对方法

目的探讨子宫内膜异位症患者的焦虑及应对方法。方法采用现象学方法进行定性研究。通过标准抽样选择16名诊断为子宫内膜异位症的妇女。采用归纳分析法对数据进行分析。结果患者平均年龄32.62±7.42岁，诊断时平均年龄27.50±6.87岁，出现症状时平均年龄22.37±8.13岁。只有4名女性在诊断前听说过子宫内膜异位症。所有希望怀孕的已婚参与者（n = 7）都被诊断为不孕症。确定了三个主题和九个副主题：1 .诊断时的情绪（恐惧、焦虑、悲伤、感觉不好、惊讶、宽慰、麻木、感觉不完整和抑郁）；2。与子宫内膜异位症相关的焦虑（怀孕、慢性疼痛、无法应对、卵巢损伤、药物副作用、延误诊断、缺乏信息、囊肿破裂、害怕孩子遗传）；3。应对策略（研究、回避、更换医生、心理支持、定期检查、接受/放弃、家庭支持、积极思考、卵母细胞冷冻）。结论由于子宫内膜异位症治疗和随访的长期性，密切监测并提供社会和心理支持是必要的。建议提高公众和卫生专业人员的认识，组织教育活动，促进机构间合作。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Journal of evaluation in clinical practice 医学-卫生保健

CiteScore

4.80

自引率

4.20%

发文量

143

审稿时长

3-8 weeks

期刊介绍： The Journal of Evaluation in Clinical Practice aims to promote the evaluation and development of clinical practice across medicine, nursing and the allied health professions. All aspects of health services research and public health policy analysis and debate are of interest to the Journal whether studied from a population-based or individual patient-centred perspective. Of particular interest to the Journal are submissions on all aspects of clinical effectiveness and efficiency including evidence-based medicine, clinical practice guidelines, clinical decision making, clinical services organisation, implementation and delivery, health economic evaluation, health process and outcome measurement and new or improved methods (conceptual and statistical) for systematic inquiry into clinical practice. Papers may take a classical quantitative or qualitative approach to investigation (or may utilise both techniques) or may take the form of learned essays, structured/systematic reviews and critiques.