THE SWEDISH NEEDS ASSESSMENT PROJECT TO ENHANCE LIFE FOR PEOPLE LIVING WITH SPINAL CORD INJURY: SYNTHESIZED EVIDENCE OF NEEDS TO BE MET, RESEARCHER PRIORITIES, AND KNOWLEDGE GAPS.

Jeanette Melin, Emelie Axwalter, Gunilla Åhrén, Katharina Stibrant Sunnerhagen, Åsa Lundgren Nilsson, Johanna Wangdell
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Abstract

Objective: The aim of this report is to describe the aggregated insights and key findings from a Swedish need assessment project. The project comprised 3 parallel studies identifying [a] needs to be met, [b] research questions, and [c] knowledge translation gaps related to enhancing the lives of people with spinal cord injury (SCI).

Methods: The project included people living with SCI, their relatives, health professionals, and personal care assistants. Analyses were conducted with the aim of identifying commonalities and connections between the results of the 3 individual studies.

Results: The aggregated insights and key findings from this project can be summarized into 3 themes. First, a well-functioning healthcare, rehabilitation, and supporting system must have a holistic perspective on what it means to live with SCI. Second, aging is about living with the SCI and getting old with the SCI. Third, when family members receive their own support, they can provide good support to the person living with SCI.

Conclusion: New evidence from the Swedish needs assessment project reveals the needs that currently have the greatest impact on improving the lives of people with SCI, which can guide researchers, healthcare providers, and knowledge translators.

瑞典改善脊髓损伤患者生活的需求评估项目:需要满足的综合证据、研究人员的优先事项和知识差距。
目的:本报告的目的是描述来自瑞典需求评估项目的汇总见解和主要发现。该项目由3个平行研究组成,确定了[a]需要满足的需求,[b]研究问题,以及[c]与改善脊髓损伤(SCI)患者生活相关的知识翻译差距。方法:研究对象包括脊髓损伤患者及其亲属、卫生专业人员和个人护理助理。进行分析的目的是确定3个单独研究结果之间的共性和联系。结果:本项目的综合见解和主要发现可归纳为3个主题。首先,一个运作良好的医疗保健、康复和支持系统必须对脊髓损伤患者的生活意义有一个整体的认识。第二,衰老就是和脊髓损伤一起生活,和脊髓损伤一起变老。第三,当家庭成员得到自己的支持时,他们可以为SCI患者提供很好的支持。结论:来自瑞典需求评估项目的新证据揭示了目前对改善SCI患者生活影响最大的需求,可以指导研究人员,医疗保健提供者和知识翻译人员。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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