A co-produced patient-reported outcomes-driven dashboard to support shared decision-making in rheumatologic diseases: a feasibility study.

IF 3.4 4区 医学 Q2 RHEUMATOLOGY
Maja Kuharic, Courtney N Hurt, George J Greene, Eric Ruderman, Yvonne C Lee, Arthur M Mandelin, David Cella, John D Peipert
{"title":"A co-produced patient-reported outcomes-driven dashboard to support shared decision-making in rheumatologic diseases: a feasibility study.","authors":"Maja Kuharic, Courtney N Hurt, George J Greene, Eric Ruderman, Yvonne C Lee, Arthur M Mandelin, David Cella, John D Peipert","doi":"10.55563/clinexprheumatol/7ecam5","DOIUrl":null,"url":null,"abstract":"<p><strong>Objectives: </strong>This study explored the potential of a co-produced clinical dashboard on shared decision-making (SDM) and patient-reported outcomes (PROs), and its usability in rheumatology care.</p><p><strong>Methods: </strong>We conducted a prospective, single-group, pretest-posttest study involving patients with rheumatologic diseases (RD). Patients completed PROs via their patient portal which was integrated with the electronic health record (EHR), and data were displayed on a dashboard accessible to clinicians. The collaboRATE tool assessed SDM. Changes in three Patient-Reported Outcomes Measurement Information System® (PROMIS®) measures (Physical Function, Fatigue, Pain Interference) were evaluated using the Likely Change Index. Dashboard usability was assessed with the System Usability Scale (SUS), where a score above 68 indicates above-average usability, user satisfaction was assessed with the SPHERE questionnaire, and dashboard integration was assessed with the Normalization Measure Development (NOMAD) scale.</p><p><strong>Results: </strong>We enrolled 123 patients with RD between December 2021 and April 2022. The participants were predominantly female (80.3%), aged 24-82 years (mean: 54, SD: 15.0), with rheumatoid arthritis being the most common condition (37.4%). Three months after the dashboard integration, top box scores on all CollaboRATE questions increased significantly from 35% to 55% (p<0.001). The most significant PRO improvement was Pain Interference, with 35.5% of participants showing clinically significant improvement. The dashboard achieved an above-average user experience, as evidenced by its average SUS score of 75.9.</p><p><strong>Conclusions: </strong>Integrating a clinical dashboard into RD management may support SDM and pain management. This innovative approach enhances interactions between patients and clinicians, and increases patient involvement in their care.</p>","PeriodicalId":10274,"journal":{"name":"Clinical and experimental rheumatology","volume":" ","pages":"1593-1603"},"PeriodicalIF":3.4000,"publicationDate":"2025-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Clinical and experimental rheumatology","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.55563/clinexprheumatol/7ecam5","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"2025/7/22 0:00:00","PubModel":"Epub","JCR":"Q2","JCRName":"RHEUMATOLOGY","Score":null,"Total":0}
引用次数: 0

Abstract

Objectives: This study explored the potential of a co-produced clinical dashboard on shared decision-making (SDM) and patient-reported outcomes (PROs), and its usability in rheumatology care.

Methods: We conducted a prospective, single-group, pretest-posttest study involving patients with rheumatologic diseases (RD). Patients completed PROs via their patient portal which was integrated with the electronic health record (EHR), and data were displayed on a dashboard accessible to clinicians. The collaboRATE tool assessed SDM. Changes in three Patient-Reported Outcomes Measurement Information System® (PROMIS®) measures (Physical Function, Fatigue, Pain Interference) were evaluated using the Likely Change Index. Dashboard usability was assessed with the System Usability Scale (SUS), where a score above 68 indicates above-average usability, user satisfaction was assessed with the SPHERE questionnaire, and dashboard integration was assessed with the Normalization Measure Development (NOMAD) scale.

Results: We enrolled 123 patients with RD between December 2021 and April 2022. The participants were predominantly female (80.3%), aged 24-82 years (mean: 54, SD: 15.0), with rheumatoid arthritis being the most common condition (37.4%). Three months after the dashboard integration, top box scores on all CollaboRATE questions increased significantly from 35% to 55% (p<0.001). The most significant PRO improvement was Pain Interference, with 35.5% of participants showing clinically significant improvement. The dashboard achieved an above-average user experience, as evidenced by its average SUS score of 75.9.

Conclusions: Integrating a clinical dashboard into RD management may support SDM and pain management. This innovative approach enhances interactions between patients and clinicians, and increases patient involvement in their care.

共同制作的患者报告结果驱动的仪表板,以支持风湿病共同决策:可行性研究
目的:本研究探讨了共同制作的关于共同决策(SDM)和患者报告结果(PROs)的临床仪表板的潜力,及其在风湿病护理中的可用性。方法:我们进行了一项涉及风湿病(RD)患者的前瞻性、单组、前测后测研究。患者通过与电子健康记录(EHR)集成的患者门户完成pro,数据显示在临床医生可以访问的仪表板上。协作工具评估SDM。使用可能变化指数评估三项患者报告结果测量信息系统(PROMIS®)测量(身体功能、疲劳、疼痛干扰)的变化。仪表板可用性用系统可用性量表(SUS)来评估,其中得分高于68表示高于平均水平的可用性,用户满意度用SPHERE问卷来评估,仪表板集成用规范化度量开发量表(NOMAD)来评估。结果:我们在2021年12月至2022年4月期间招募了123名RD患者。参与者主要是女性(80.3%),年龄24-82岁(平均:54岁,标准差:15.0),类风湿关节炎是最常见的疾病(37.4%)。集成仪表板三个月后,所有协作问题的顶框得分从35%显著增加到55%(结论:将临床仪表板集成到研发管理中可能支持SDM和疼痛管理)。这种创新的方法增强了患者和临床医生之间的互动,并增加了患者对其护理的参与。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
求助全文
约1分钟内获得全文 求助全文
来源期刊
CiteScore
6.10
自引率
18.90%
发文量
377
审稿时长
3-6 weeks
期刊介绍: Clinical and Experimental Rheumatology is a bi-monthly international peer-reviewed journal which has been covering all clinical, experimental and translational aspects of musculoskeletal, arthritic and connective tissue diseases since 1983.
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
确定
请完成安全验证×
copy
已复制链接
快去分享给好友吧!
我知道了
右上角分享
点击右上角分享
0
联系我们:info@booksci.cn Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。 Copyright © 2023 布克学术 All rights reserved.
京ICP备2023020795号-1
ghs 京公网安备 11010802042870号
Book学术文献互助
Book学术文献互助群
群 号:604180095
Book学术官方微信