Delivering home-based palliative care during COVID-19 in Taiwan: a qualitative study with interdisciplinary team members.

IF 2.5 2区 医学 Q2 HEALTH CARE SCIENCES & SERVICES
Yu-Hsuan Wang, Mireille Jacobson, Pei-Yu Tsai, Susan Enguidanos
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引用次数: 0

Abstract

Background: The COVID-19 pandemic disrupted palliative care globally, but its impact on home-based palliative care (HBPC) within universal healthcare systems, particularly in Asian contexts, remains understudied. Taiwan's National Health Insurance system supports a well-established HBPC program. This background offers a unique lens to examine how interdisciplinary teams adapted HBPC delivery during different pandemic phases.

Methods: This qualitative study used telephone-based semi-structured interviews with 14 HBPC providers from two medical centers: one in a rural area and one in an urban area. Transcripts were analyzed using inductive thematic analysis. The study design and reporting were guided by the Consolidated Criteria for Reporting Qualitative Research (COREQ).

Results: Four themes related to the impact of the COVID-19 pandemic on the delivery of HBPC were identified: (1) variation in impacts across time, (2) divergent views of the impact on the uptake of HBPC, (3) difficulties in providing adequate care under restrictions, and (4) disrupted care coordination.

Conclusion: Despite Taiwan's well-established palliative care programs, HBPC delivery faced ethical, clinical, and coordination challenges during the pandemic. This experience reveals an urgent need to strengthen virtual care infrastructure, establish clearer interdisciplinary coordination protocols, and provide sustained support for caregivers. These lessons should inform future public health preparedness strategies to ensure that infection control measures do not come at the expense of holistic, patient- and family-centered palliative care.

Abstract Image

台湾新冠肺炎期间提供居家姑息治疗:跨学科团队的质性研究
背景:2019冠状病毒病大流行扰乱了全球范围内的姑息治疗,但其对全民医疗保健系统内家庭姑息治疗(HBPC)的影响,特别是在亚洲国家,仍未得到充分研究。台湾的国民健康保险制度支持一个完善的HBPC计划。这一背景提供了一个独特的视角来研究跨学科团队如何在不同的大流行阶段适应HBPC的交付。方法:本定性研究采用基于电话的半结构化访谈,采访了来自两个医疗中心的14名HBPC提供者:一个在农村地区,一个在城市地区。对转录本进行归纳主题分析。研究设计和报告遵循定性研究报告综合标准(COREQ)。结果:确定了与COVID-19大流行对HBPC提供影响相关的四个主题:(1)影响随时间的变化,(2)对HBPC吸收影响的不同看法,(3)在限制下提供充分护理的困难,以及(4)中断的护理协调。结论:尽管台湾有完善的姑息治疗项目,但在大流行期间,HBPC的提供面临伦理、临床和协调方面的挑战。这一经验表明,迫切需要加强虚拟护理基础设施,建立更清晰的跨学科协调协议,并为护理人员提供持续的支持。这些经验教训应为今后的公共卫生防范战略提供参考,以确保感染控制措施不以牺牲以病人和家庭为中心的整体姑息治疗为代价。
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来源期刊
BMC Palliative Care
BMC Palliative Care HEALTH CARE SCIENCES & SERVICES-
CiteScore
4.60
自引率
9.70%
发文量
201
审稿时长
21 weeks
期刊介绍: BMC Palliative Care is an open access journal publishing original peer-reviewed research articles in the clinical, scientific, ethical and policy issues, local and international, regarding all aspects of hospice and palliative care for the dying and for those with profound suffering related to chronic illness.
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