The impact of stigma on quality of life in patients with epilepsy.

IF 1.5 4区医学 Q4 NEUROSCIENCES

Social Neuroscience Pub Date : 2025-04-01 Epub Date: 2025-07-20 DOI:10.1080/17470919.2025.2536572

Mukadder Mollaoğlu, Melike Yilmaz

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引用次数: 0

Abstract

Objective: Epilepsy is one of the chronic neurological diseases with high stigmatization due to the psychosocial problems caused by seizures. The study was conducted to examine the quality of life and stigma in people with epilepsy (PWE).

Method: The data of the descriptive and cross-sectional study were collected using the Personal Information Form, the Quality of Life in Epilepsy Inventory (QOLIE-31), and the Stigma Scale for Epilepsy (SSE) and analyzed using the SPSS program.

Results: The study included 86 patients receiving outpatient treatment at the neurology outpatient clinic of a university hospital. The mean score of epilepsy patients in QOLIE-31 was 61.95 ± 22.68, while their mean score in the SSE was 74.67 ± 5.94. It was determined that gender, seizure type, antiepileptic drug regimen, and seizure time affected the quality of life in PWE, while educational status and seizure type affected stigma. It was determined that there was a significant relationship between the level of stigma and quality of life in epilepsy patients, and that their quality of life decreased as the level of stigma increased.

Conclusion: As a result, epilepsy negatively affects the quality of life of patients and causes stigma. Reducing stigma is effective in increasing the quality of life.

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病耻感对癫痫患者生活质量的影响

目的：癫痫是一种因癫痫发作引起的社会心理问题而被高度污名化的慢性神经系统疾病。该研究旨在调查癫痫患者的生活质量和耻辱感。方法：采用个人信息表、癫痫生活质量量表（QOLIE-31）和癫痫病耻感量表（SSE）收集描述性和横断面研究数据，采用SPSS软件进行分析。结果：本研究纳入86例在某大学医院神经内科门诊接受门诊治疗的患者。QOLIE-31组癫痫患者平均得分为61.95±22.68分，SSE组癫痫患者平均得分为74.67±5.94分。性别、癫痫发作类型、抗癫痫药物治疗方案和癫痫发作时间影响PWE患者的生活质量，而教育程度和癫痫发作类型影响病耻感。结果表明，癫痫患者的病耻感水平与生活质量之间存在显著的关系，患者的生活质量随着病耻感水平的升高而下降。结论：癫痫会对患者的生活质量产生负面影响，并引起耻辱感。减少耻辱感对提高生活质量是有效的。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Social Neuroscience 医学-神经科学

CiteScore

3.40

自引率

5.00%

发文量

审稿时长

6-12 weeks

期刊介绍： Social Neuroscience features original empirical Research Papers as well as targeted Reviews, Commentaries and Fast Track Brief Reports that examine how the brain mediates social behavior, social cognition, social interactions and relationships, group social dynamics, and related topics that deal with social/interpersonal psychology and neurobiology. Multi-paper symposia and special topic issues are organized and presented regularly as well. The goal of Social Neuroscience is to provide a place to publish empirical articles that intend to further our understanding of the neural mechanisms contributing to the development and maintenance of social behaviors, or to understanding how these mechanisms are disrupted in clinical disorders.