Perspectives on sexual orientation and gender identity data collection from healthcare system staff and leadership: case study in an academic hospital setting.

Abstract

Collecting sexual orientation and gender identity (SOGI) data in healthcare settings is essential for addressing the unique health needs and cancer burden of this population. We conducted a qualitative study to assess institutional leadership and staff perspectives on collecting SOGI data, aiming to improve these processes within our academic medical center. In key informant interviews with 17 staff and leaders, we asked about current SOGI data collection practices and facilitators/barriers for implementing systematic data collection. We sought to understand staff experiences with SOGI data collection, comfort and willingness to collect these data, and challenges in broad implementation of SOGI data collection. Findings indicate need for: training on SOGI data collection to increase staff confidence in engaging with patients; clear workflows for when, how, and by whom SOGI data should be collected; and implementation of flexible approaches to data collection, while balancing patient privacy.