Implementation factors for sexual orientation and gender identity patient data collection in a comprehensive cancer center: findings from a center-wide readiness assessment survey for the ASK Sexual Orientation and Gender Identity study.

Abstract

Between September 2022 and August 2024, a mixed-method study was conducted at the University of New Mexico Comprehensive Cancer Center to enhance sexual orientation and gender identity data collection to facilitate meaningful use of sexual orientation and gender identity data in clinical care for sexual and gender minority patients. This report presents findings from a center-wide readiness assessment survey to identify and analyze the complex challenges affecting sexual orientation and gender identity data collection implementation. Over a 1.5-month period, a REDCap online survey was distributed to assess organizational and individual readiness to implement and expand on the collection of sexual orientation and gender identity data at the cancer center. The survey consisted of 4 widely used readiness measures: Organizational Readiness for Implementing Change; Implementation Leadership Scale; Implementation Climate Scale; and an adapted version of the Lesbian, Gay, Bisexual, Transgender, Queer (or Questioning), Intersex Health Knowledge, Attitudes and Practice Scale. Findings specific to perceived gaps in leadership support and resource provision informed multilevel strategies to improve sexual orientation and gender identity data collection and use.