Empowering Nurses to Enhance Disaster Preparedness for Individuals With Sickle Cell Disease: A Cross-Sectional Study

IF 3.7 3区医学 Q1 NURSING

International Nursing Review Pub Date : 2025-07-17 DOI:10.1111/inr.70067

Tara Heagele, Brittany McCrary

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引用次数: 0

Abstract

Aims

To assess home disaster preparedness levels of individuals with sickle cell disease to determine education and resource needs and inform policy. To evaluate the association between healthcare provider discussion of preparedness and level of preparedness.

Background

Research demonstrates that extreme weather events and public health emergencies result in increased hospital visits for people with sickle cell disease, yet little is known about home disaster preparedness knowledge and actions of these individuals.

Methods

Cross-sectional study of US adults diagnosed with sickle cell disease. The independent variable was the healthcare provider discussion of household disaster preparedness. The dependent variable was the Household Emergency Preparedness Instrument's General Preparedness score. Participants self-reported their preparedness actions and disaster supplies through an online survey. Descriptive statistics were analyzed, along with a Welch t test, to examine the associations between the study variables. This study was reported according to the STROBE checklist.

Results

The average General Preparedness score of this sample (N = 32) indicated that the majority of participants were not considered well prepared for disasters. Higher scores were found among participants who had discussions with their healthcare providers about how to prepare for disasters.

Discussion

The sample's average General Preparedness score was higher than other patient populations assessed with this instrument, possibly due to routine discussions about medical emergency preparedness that individuals with sickle cell disease receive from healthcare providers.

Conclusion

Home disaster preparedness levels should be improved to decrease disaster-related morbidity and mortality.

Implications for Nursing Practice and Policy

Nurses should develop or advocate for home disaster preparedness lessons, community interventions, and public policies to meet the unique needs of community members with sickle cell disease before, during, and after disasters.

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授权护士加强灾害准备个人镰状细胞病：横断面研究

目的评估镰状细胞病患者的家庭备灾水平，以确定教育和资源需求，并为政策提供信息。评估医疗保健提供者讨论准备和准备水平之间的关系。研究表明，极端天气事件和突发公共卫生事件导致镰状细胞病患者就诊次数增加，但对这些人的家庭备灾知识和行动知之甚少。方法对确诊为镰状细胞病的美国成年人进行横断面研究。自变量是医疗保健提供者对家庭备灾的讨论。因变量是家庭应急准备工具的一般准备得分。参与者通过在线调查自我报告了他们的备灾行动和救灾物资。描述性统计分析，连同韦尔奇t检验，以检查研究变量之间的关联。本研究根据STROBE检查表进行报告。结果该样本（N = 32）的平均一般准备得分表明，大多数参与者没有对灾害做好充分准备。与医疗保健提供者讨论如何应对灾难的参与者得分更高。样本的平均一般准备得分高于使用该工具评估的其他患者群体，可能是由于镰状细胞病患者从医疗保健提供者那里接受了关于医疗应急准备的常规讨论。结论应提高家庭备灾水平，以降低灾害相关的发病率和死亡率。护理实践和政策的意义护士应该开发或倡导家庭备灾课程、社区干预和公共政策，以满足镰状细胞病社区成员在灾害发生之前、期间和之后的独特需求。

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来源期刊

International Nursing Review 医学-护理

CiteScore

7.90

自引率

7.30%

发文量

审稿时长

6-12 weeks

期刊介绍： International Nursing Review is a key resource for nurses world-wide. Articles are encouraged that reflect the ICN"s five key values: flexibility, inclusiveness, partnership, achievement and visionary leadership. Authors are encouraged to identify the relevance of local issues for the global community and to describe their work and to document their experience.