Profound Autism Prevalence and Impact on Parental Caregiver Quality of Life.

IF 1.1 4区医学 Q3 NURSING

Journal of Psychosocial Nursing and Mental Health Services Pub Date : 2025-07-17 DOI:10.3928/02793695-20250707-01

Dawn M Turnage, Norma E Conner

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引用次数: 0

Abstract

Purpose: The current study aimed to examine the effects of profound autism on caregiver quality of life (QOL).

Method: This cross-sectional study involved parental caregivers of children aged 3 to 21 years with autism spectrum disorder living in Florida. Data were collected through surveys assessing caregiver QOL across physical, psychological, and environmental domains. Linear regression analyses examined the relationship between profound autism and caregiver QOL.

Results: The prevalence of profound autism in the sample was 22.4%. Regression analyses revealed that profound autism significantly predicted lower QOL in physical (F = 5.07, p = 0.007), psychological (F = 5.92, p = 0.003), and environmental (F = 11.01, p < 0.001) domains. Parental caregivers of children with profound autism reported substantially decreased QOL compared to those with children at other levels of autism severity.

Conclusion: Findings indicate that profound autism is a prevalent condition and significant risk factor for reduced caregiver QOL across multiple domains. The negative impacts on physical, psychological, and environmental well-being highlight the need for targeted support services for families with children who have profound autism. [Journal of Psychosocial Nursing and Mental Health Services, xx(x), xx-xx.].

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自闭症的深度患病率及其对父母照顾者生活质量的影响。

目的：本研究旨在探讨重度自闭症对照顾者生活质量的影响。方法：本横断面研究涉及居住在佛罗里达州的3至21岁自闭症谱系障碍儿童的父母照顾者。数据收集通过调查评估照顾者的生活质量在身体，心理和环境领域。线性回归分析检验了重度自闭症与照顾者生活质量之间的关系。结果：本组深度自闭症患病率为22.4%。回归分析显示，重度自闭症患者在生理（F = 5.07, p = 0.007）、心理（F = 5.92, p = 0.003）和环境（F = 11.01, p < 0.001）领域的生活质量较低。重度自闭症儿童的父母照料者报告说，与其他自闭症严重程度儿童的照料者相比，重度自闭症儿童的生活质量显著降低。结论：研究结果表明，深度自闭症是一种普遍存在的疾病，也是多个领域照顾者生活质量下降的重要危险因素。对身体、心理和环境健康的负面影响突出表明，有重度自闭症儿童的家庭需要有针对性的支持服务。[社会心理护理与精神卫生服务杂志，xx(x), xx-xx.]

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Journal of Psychosocial Nursing and Mental Health Services 医学-护理

CiteScore

1.60

自引率

0.00%

发文量

117

审稿时长

6-12 weeks

期刊介绍： The Journal of Psychosocial Nursing and Mental Health Services is a peer-reviewed, monthly journal for psychosocial and mental health nurses in a variety of community and institutional settings. For more than 50 years, the Journal has provided the most up-to-date, practical information available for today’s psychosocial-mental health nurse, including short contributions about psychopharmacology, mental health care of older adults, addictive behaviors and diagnoses, and child/adolescent disorders and issues. Begin to explore the Journal and all of its great benefits such as: • Monthly feature, “Clip & Save: Drug Chart,” a one-page resource of up-to-date information on current medications for various psychiatric illnesses • Access to current articles, as well as several years of archived content • Articles posted online just 2 months after acceptance • Continuing Nursing Education credits available each month