{"title":"Supporting disability-inclusive knowledge translation and patient access to knowledge: A synthesis of select special education theories.","authors":"John C Hayvon, Mary Roduta Roberts","doi":"10.1093/tbm/ibaf027","DOIUrl":null,"url":null,"abstract":"<p><p>Equitable access to knowledge and knowledge translation that is inclusive to marginalized patients-including those whose health conditions have resulted in lifelong disability-may be supportive of health equity. In enhancing the evidence base of what constitutes disability-inclusive knowledge translation, patients may be better supported in their health literacy, self-management, or autonomy in making health-related decisions. To identify potential guiding principles from the discipline of special education that has been invested in providing equitable access to knowledge for patients living with disabilities across all age groups. Qualitative synthesis of existing theories, models, and frameworks (TMFs) in special education is performed to identify constructs which may guide disability-inclusive knowledge translation. A search methodology adapted from PRISMA-ScR was conducted in Web of Science and Scopus to identify review-type studies in special education scholarship. A total of 69 unique review-type studies were retrieved in the English language, resulting in 21 meeting the inclusion criteria of presenting a special education TMF with potential to inform knowledge translation. Ten themes emerged through data charting of theoretical constructs, as well as open coding of five studies. Findings that may promote disability-inclusive knowledge translation are presented in a synthesized framework with 25 considerations. Special education TMFs are diverse in focus; this first-steps study illustrates significant potential of special education TMFs in informing disability-inclusive knowledge translation. Future studies that engage with a more expansive set of special education TMFs will bring value to implementation science.</p>","PeriodicalId":48679,"journal":{"name":"Translational Behavioral Medicine","volume":"15 1","pages":""},"PeriodicalIF":3.0000,"publicationDate":"2025-01-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12205364/pdf/","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Translational Behavioral Medicine","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1093/tbm/ibaf027","RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q1","JCRName":"PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH","Score":null,"Total":0}
引用次数: 0
Abstract
Equitable access to knowledge and knowledge translation that is inclusive to marginalized patients-including those whose health conditions have resulted in lifelong disability-may be supportive of health equity. In enhancing the evidence base of what constitutes disability-inclusive knowledge translation, patients may be better supported in their health literacy, self-management, or autonomy in making health-related decisions. To identify potential guiding principles from the discipline of special education that has been invested in providing equitable access to knowledge for patients living with disabilities across all age groups. Qualitative synthesis of existing theories, models, and frameworks (TMFs) in special education is performed to identify constructs which may guide disability-inclusive knowledge translation. A search methodology adapted from PRISMA-ScR was conducted in Web of Science and Scopus to identify review-type studies in special education scholarship. A total of 69 unique review-type studies were retrieved in the English language, resulting in 21 meeting the inclusion criteria of presenting a special education TMF with potential to inform knowledge translation. Ten themes emerged through data charting of theoretical constructs, as well as open coding of five studies. Findings that may promote disability-inclusive knowledge translation are presented in a synthesized framework with 25 considerations. Special education TMFs are diverse in focus; this first-steps study illustrates significant potential of special education TMFs in informing disability-inclusive knowledge translation. Future studies that engage with a more expansive set of special education TMFs will bring value to implementation science.
公平地获得知识和知识转化,包括边缘化患者,包括那些健康状况导致终身残疾的患者,可能有助于卫生公平。通过加强关于什么是包容残疾的知识转化的证据基础,可以更好地支持患者的健康素养、自我管理或自主做出与健康有关的决定。从特殊教育学科中确定潜在的指导原则,为所有年龄组的残疾患者提供公平获得知识的机会。对现有的特殊教育理论、模型和框架(tmf)进行定性综合,以确定可能指导包容残疾知识翻译的结构。在Web of Science和Scopus中采用了一种改编自PRISMA-ScR的搜索方法来识别特殊教育奖学金中的综述型研究。用英语检索了69项独特的综述型研究,其中21项符合提出具有知识翻译潜力的特殊教育TMF的纳入标准。通过理论结构的数据图表和五项研究的开放编码,出现了十个主题。在一个综合的框架中提出了25个考虑因素,这些发现可能会促进残疾人包容性知识翻译。特殊教育管理基金的重点是多样化的;这一初步研究表明,特殊教育tmf在为残疾人包容性知识翻译提供信息方面具有重要潜力。未来的研究将涉及更广泛的特殊教育tmf,这将为实施科学带来价值。
期刊介绍:
Translational Behavioral Medicine publishes content that engages, informs, and catalyzes dialogue about behavioral medicine among the research, practice, and policy communities. TBM began receiving an Impact Factor in 2015 and currently holds an Impact Factor of 2.989.
TBM is one of two journals published by the Society of Behavioral Medicine. The Society of Behavioral Medicine is a multidisciplinary organization of clinicians, educators, and scientists dedicated to promoting the study of the interactions of behavior with biology and the environment, and then applying that knowledge to improve the health and well-being of individuals, families, communities, and populations.