Huan Xu, Chao Wu, Changchang Chen, Bo Yan, Ning Zha, Kai Zhang, Fang Liu, Hongjuan Lang
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引用次数: 0
Abstract
Background: Inflammatory Bowel Disease (IBD) is a chronic condition that significantly affects the physical and mental health of adolescents. Caregivers are crucial in the treatment process, offering both physical care and emotional support. Caring for adolescents with IBD can significantly affect caregivers' physical, psychological and daily lives, presenting a range of emotional, financial and practical challenges.
Aims: To explore and integrate the caregiving experiences of caregivers of adolescents with IBD, in order to inform future caregiving support and intervention strategies.
Design: A systematic evaluation and synthesis of qualitative studies was conducted based on ENTREQ guidelines.
Methods: A systematic search was performed in PubMed, Embase, Cochrane Library, Web of Science, CINAHL, PsyINFO, CNKI, Wangfang and VIP for qualitative studies on the caregiving experiences of caregivers of adolescents with IBD, from the start of the research until March 14 2025. The quality of the literature was assessed using the Joanna Briggs Institute's quality assessment criteria for qualitative research, and included studies were integrated using a pooled approach.
Results: In total, nine studies were included, from which 69 themes were extracted. The findings were grouped into five main themes and 12 subthemes: Psychological and emotional challenges; Heavy caregiving burden; Multiple challenges; Indispensable external support; Positive progress.
Conclusions: Caregivers of adolescents with IBD face numerous challenges. Healthcare professionals should recognise the varied needs of these caregivers and develop tailored support programmes to help alleviate psychological stress and enhance caregiving quality. Additionally, the Internet and community platforms can be utilised to establish a family support system, ensuring the well-being of both caregivers and adolescents.
No patient or public contribution: This study is a meta-synthesis and does not require relevant contributions from patients or the public.
背景：炎症性肠病（IBD）是一种严重影响青少年身心健康的慢性疾病。护理人员在治疗过程中至关重要，提供身体护理和情感支持。照顾患有IBD的青少年会显著影响照顾者的身体、心理和日常生活，带来一系列情感、经济和实际挑战。目的：探讨和整合IBD青少年照护者的照护经验，为未来的照护支持和干预策略提供依据。设计：根据ENTREQ指南对定性研究进行系统评价和综合。方法：系统检索PubMed、Embase、Cochrane Library、Web of Science、CINAHL、PsyINFO、CNKI、Wangfang、VIP等数据库，从研究开始至2025年3月14日，对青少年IBD护理人员的护理体验进行定性研究。采用乔安娜布里格斯研究所定性研究的质量评估标准对文献的质量进行评估，并采用汇总方法对纳入的研究进行整合。结果：共纳入9项研究，从中提取出69个主题。研究结果分为5个主题和12个副主题：心理和情感挑战；沉重的照顾负担；多个挑战;不可或缺的外部支持；积极进展。结论：青少年IBD护理人员面临诸多挑战。医护专业人员应认识到这些照顾者的不同需求，并制定有针对性的支持计划，以帮助减轻心理压力，提高照顾质量。此外，可以利用互联网和社区平台建立家庭支持系统，确保照顾者和青少年的福祉。无患者或公众贡献：本研究是一项综合研究，不需要患者或公众的相关贡献。试验注册：PROSPERO编号：CRD 420250654435。
期刊介绍：
Nursing Open is a peer reviewed open access journal that welcomes articles on all aspects of nursing and midwifery practice, research, education and policy. We aim to publish articles that contribute to the art and science of nursing and which have a positive impact on health either locally, nationally, regionally or globally
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