Exploring Literature on Data Governance in the Health Care of Older Persons: Scoping Review.

IF 5 Q1 GERIATRICS & GERONTOLOGY
JMIR Aging Pub Date : 2025-06-27 DOI:10.2196/73625
Angely Garcia, Ayra Mae Balingbing, Yves Palad
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引用次数: 0

Abstract

Background: Health data are growing rapidly, and the processing of such data is evolving. Research on data governance in older persons' health care is unexplored, providing little guidance for practice and future studies.

Objective: This scoping review aimed to synthesize available information on data governance in the context of older persons' health based on evidence from literature.

Methods: The study followed the methodological framework of Arksey and O'Malley and PRISMA-ScR (Preferred Reporting Items for Systematic Reviews and Meta-Analyses Extension for Scoping Reviews). Online databases, namely, PubMed, Cochrane, Ovid, ACM, IEEE Xplore, and Google Scholar were searched by 2 independent reviewers (AG and AMB) for studies on older persons' health data governance published from January 2000 to April 2024. The independent reviewers performed the search, screening, data extraction, and review of full-text papers. A third reviewer (YP) made the final decision for unresolved discrepancies between the first 2 reviewers. The framework by the World Health Organization Pan American Health Organization, a high-level framework for planning and implementing data governance in public health, was used in the data extraction and analysis. Descriptive statistics were used, and a descriptive approach was used to summarize the results of the scoping review.

Results: A total of 9840 titles were identified and 57 papers were included. Of these, 35 (61.4%) focused on technology, 19 (33.3%) on processes, and 3 (5.3%) on people. Data controller, processor, researchers, data subject or patient (including family or relatives), and relevant organizations were involved in older persons' data governance. Data governance frameworks were designed and implemented by reviewing the current evidence, involving the stakeholders throughout the process, implementing specific procedures (eg, collection and aggregating health data), and monitoring and evaluating them.

Conclusions: The review underscores the importance of the involvement of relevant stakeholders and the use of various innovative tools and approaches in governing data related to the health of older persons. Meanwhile, research specifically addressing data governance for older persons' health conditions is limited. To enhance health outcomes for older persons, effective data governance is essential, alongside further research on relevant policies and practices.

老年人医疗保健数据治理的文献探索:范围审查。
背景:卫生数据增长迅速,对这些数据的处理也在不断发展。老年人医疗保健中的数据治理研究尚未开展,对实践和未来研究的指导作用不大。目的:本范围审查旨在根据文献证据综合有关老年人健康背景下数据治理的现有信息。方法:本研究采用Arksey和O'Malley以及PRISMA-ScR(系统评价首选报告项目和范围评价的元分析扩展)的方法框架。由2位独立审稿人(AG和AMB)检索PubMed、Cochrane、Ovid、ACM、IEEE Xplore和谷歌Scholar等在线数据库,检索2000年1月至2024年4月发表的老年人健康数据治理研究。独立审稿人进行了全文论文的搜索、筛选、数据提取和审查。第三位审稿人(YP)对前两位审稿人之间未解决的差异做出最终决定。在数据提取和分析中使用了世界卫生组织泛美卫生组织制定的框架,这是公共卫生领域规划和实施数据治理的高级别框架。使用描述性统计,并使用描述性方法来总结范围审查的结果。结果:共检索到9840篇题目,纳入57篇论文。其中,35个(61.4%)关注技术,19个(33.3%)关注流程,3个(5.3%)关注人员。数据控制者、处理者、研究人员、数据主体或患者(包括家属或亲属)以及相关组织都参与了老年人数据治理。数据治理框架的设计和实施是通过审查现有证据、在整个过程中让利益攸关方参与、执行具体程序(例如,收集和汇总卫生数据)以及监测和评估这些程序进行的。结论:审查强调了相关利益攸关方的参与以及在管理与老年人健康有关的数据方面使用各种创新工具和方法的重要性。与此同时,专门针对老年人健康状况的数据治理的研究有限。为了增进老年人的健康成果,除了对相关政策和做法进行进一步研究外,还必须进行有效的数据治理。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
JMIR Aging
JMIR Aging Social Sciences-Health (social science)
CiteScore
6.50
自引率
4.10%
发文量
71
审稿时长
12 weeks
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