Quality of Life in Children With Epilepsy in the Area of Marrakesh

IF 2.1 3区医学 Q2 CLINICAL NEUROLOGY

Pediatric neurology Pub Date : 2025-05-30 DOI:10.1016/j.pediatrneurol.2025.05.026

Meryem El Azizi PhD (Pediatric Resident) , Widad Lahmini MD (Professor of Pediatric) , Mounir Bourrous MD (Professor of Pediatric)

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引用次数: 0

Abstract

Background

Epilepsy can have a considerable effect on the quality of life (QoL) of children in its different aspects. To date, available knowledge on QoL of children with epilepsy (CWE) is limited in Morocco. The goals of this study are to analyze the overall QoL in CWE in its different aspects in the area of Marrakesh and to identify the contributing factors amenable to change.

Methods

This prospective study included children followed up for epilepsy in the Pediatric Department of the Mohammed VI University Hospital of Marrakesh during a period of one year. The patient's caregivers were handed a questionnaire to fill in with the presence of the same doctor each time.

Results

Age varied between 5 and 16 years. Most of the patients' parents were married (94.20%). The majority of children had seizure duration of more than one year (90.4%). Patients had one seizure or more per year in 72.1% of cases. The QoL overall mean score was 83.70%. The physical section was found to be affected the most with the lowest mean score (78.84%). The overall QoL was not significantly affected by demographic characteristics.

Conclusions

The factors affecting the overall QoL mean score were seizure frequency and polytherapy. The cognitive aspect was affected by seizure duration and therapy duration. The social aspect was affected by the parents' marital status and seizure frequency. The physical aspect was only affected by the seizure frequency. Recognition of these aspects will be helpful for professionals enabling effective care for CWE rather than a simple treatment control.

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马拉喀什地区癫痫儿童的生活质量

背景癫痫在不同方面对儿童的生活质量（QoL）有相当大的影响。迄今为止，摩洛哥关于癫痫儿童生活质量的现有知识有限。本研究的目的是分析马拉喀什地区CWE在其不同方面的总体生活质量，并确定可改变的促成因素。方法本前瞻性研究纳入了在马拉喀什穆罕默德六世大学医院儿科随访一年的癫痫患儿。病人的护理人员每次都要在同一位医生在场的情况下填写一份问卷。结果年龄在5 ~ 16岁之间。患者父母以已婚居多（94.20%）。绝大多数患儿癫痫发作时间在1年以上（90.4%）。72.1%的患者每年发作一次或多次。生活质量总平均得分为83.70%。身体部分受影响最大，平均得分最低（78.84%）。总体生活质量不受人口统计学特征的显著影响。结论影响患者总体生活质量平均评分的因素有癫痫发作频率和多种治疗。认知方面受癫痫发作时间和治疗时间的影响。社会方面受父母婚姻状况和发作频率的影响。身体方面仅受发作频率的影响。认识到这些方面将有助于专业人员对CWE进行有效的护理，而不是简单的治疗控制。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Pediatric neurology 医学-临床神经学

CiteScore

4.80

自引率

2.60%

发文量

176

审稿时长

78 days

期刊介绍： Pediatric Neurology publishes timely peer-reviewed clinical and research articles covering all aspects of the developing nervous system. Pediatric Neurology features up-to-the-minute publication of the latest advances in the diagnosis, management, and treatment of pediatric neurologic disorders. The journal''s editor, E. Steve Roach, in conjunction with the team of Associate Editors, heads an internationally recognized editorial board, ensuring the most authoritative and extensive coverage of the field. Among the topics covered are: epilepsy, mitochondrial diseases, congenital malformations, chromosomopathies, peripheral neuropathies, perinatal and childhood stroke, cerebral palsy, as well as other diseases affecting the developing nervous system.