Improving pediatric heart failure outcomes through collaboration and innovation: The current status of the Advanced Cardiac Therapies Improving Outcomes Network (ACTION)

JHLT Open Pub Date : 2025-06-02 DOI:10.1016/j.jhlto.2025.100311

Lydia K. Wright MD, MSc, Assistant Professor , David M. Peng MD , Joseph A. Spinner MD , Jenna M. Murray NP , Matthew J. O’Connor MD , Christina J. VanderPluym MD , David N. Rosenthal MD , Lauren Smyth MHA , Angela Lorts

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Abstract

The Advanced Cardiac Therapies Improving Outcomes Network (ACTION) was founded in 2017 as a learning health care system to bring together all stakeholders with the aim of improving outcomes for pediatric and congenital heart disease patients with heart failure. From an initial focus on the ventricular assist device (VAD) population, work in the network has expanded to encompass the scope of heart failure in these patients. Through the collection and use of real-world data, the field has gained greater understanding of best practices in care of these patients, as well as improved access to devices with pediatric labeling of devices previously approved only for adults. Recent and current work across the network’s major focus areas (VAD, heart failure, muscular dystrophy, and Fontan) are highlighted.

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通过合作和创新改善儿童心力衰竭结局：先进心脏治疗改善结局网络（ACTION）的现状

先进心脏治疗改善结果网络（ACTION）成立于2017年，是一个学习型医疗保健系统，旨在将所有利益相关者聚集在一起，以改善儿科和先天性心脏病心力衰竭患者的结果。从最初的关注心室辅助装置（VAD）人群，该网络的工作已经扩展到包括心力衰竭患者的范围。通过收集和使用真实世界的数据，该领域对护理这些患者的最佳实践有了更深入的了解，并且改进了以前仅批准用于成人的设备的儿科标签设备的获取。重点介绍了该网络主要关注领域（VAD、心力衰竭、肌肉萎缩症和Fontan）最近和当前的工作。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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JHLT Open

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