Sleep at home for older persons with dementia and their caregivers: a qualitative study of their experiences and challenges.

IF 3.7 2区社会学 Q1 GERONTOLOGY

European Journal of Ageing Pub Date : 2025-06-16 DOI:10.1007/s10433-025-00858-w

C A M Huisman, E R C M Huisman, R G A Brankaert, H S M Kort

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Abstract

Most people with dementia (PwD) live with the support of their caregiver. Sleep issues are common among all types of dementia and increase the burden on the IC. Disturbed nights may lead to earlier admission to nursing homes. This study explored the experiences and challenges related to the sleep of PwD and IC. A qualitative study using semi-structured interviews was performed. The target groups were PwD, ICs, and care professionals. The sample comprised 20 informal caregivers, 2 PwD, and 9 care professionals. Thematic analysis was used to identify patterns within and across data concerning the experiences and challenges of participants. In total, 31 participants were interviewed in 28 sessions. Three themes were identified, namely, (a) challenges in maintaining time orientation and day/night routines, (b) irregularities and concerns of informal caregivers at night, and (c) environmental cues that support or disturb sleep. The results provide insight into the experiences of IC at home regarding their sleep and the sleep of PwD at home. Our results may guide the development of non-pharmacological interventions to support sleep and day structure with a certain balance in activities.

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老年痴呆症患者及其照顾者在家睡眠：对其经历和挑战的定性研究。

大多数痴呆症患者在照顾者的支持下生活。睡眠问题在所有类型的痴呆症中都很常见，并增加了IC的负担。夜间不安可能导致提前入住养老院。本研究探讨了与PwD和IC睡眠相关的经验和挑战。采用半结构化访谈进行了定性研究。目标人群为残疾人士、残疾人士和护理专业人员。样本包括20名非正式护理人员，2名残疾人和9名护理专业人员。专题分析用于确定有关参与者的经历和挑战的数据内部和数据之间的模式。在28次会议中，总共采访了31名与会者。确定了三个主题，即(a)维持时间取向和昼夜惯例的挑战，(b)夜间非正式照顾者的不规则性和关注点，以及(c)支持或干扰睡眠的环境线索。研究结果提供了对家庭IC的睡眠体验和家庭PwD的睡眠体验的见解。我们的研究结果可以指导非药物干预的发展，以支持睡眠和白天的结构与一定的活动平衡。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

European Journal of Ageing GERONTOLOGY-

CiteScore

6.50

自引率

7.90%

发文量

期刊介绍： The European Journal of Ageing: Social, Behavioural and Health Perspectives is an interdisciplinary journal devoted to the understanding of ageing in European societies and the world over. EJA publishes original articles on the social, behavioral and population health aspects of ageing and encourages an integrated approach between these aspects. Emphasis is put on publishing empirical research (including meta-analyses), but conceptual papers (including narrative reviews) and methodological contributions will also be considered. EJA welcomes expert opinions on critical issues in ageing. By stimulating communication between researchers and those using research findings, it aims to contribute to the formulation of better policies and the development of better practice in serving older adults. To further specify, with the term ''social'' is meant the full scope of social science of ageing related research from the micro to the macro level of analysis. With the term ''behavioural'' the full scope of psychological ageing research including life span approaches based on a range of age groups from young to old is envisaged. The term ''population health-related'' denotes social-epidemiological and public health oriented research including research on functional health in the widest possible sense.