Engaging community members in health-related research and interventions

Jagdish Khubchandani, Elizabeth England-Kennedy, Michael Wiblishauser, Karen Kopera-Frye, Fern J. Webb
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Abstract

The landscape of public health intervention planning and conducting clinical research has changed a lot in the 21st century with profound alterations occurring since the COVID-19 pandemic. However, the one fundamental, often challenging, but undermined aspect is the involvement of the general public in medical research or community health interventions. This editorial underscores the paramount significance of involving community members in clinical research or public health interventions to enhance their relevance, effectiveness, and sustainability. We introduce a framework based on six essential domains, referred to as the "Six Cs" (i.e. Constituents & Connections; Communication & Cultivation of Trust; Cultural Competency & Conduct Norms; Context, Capacity & Constraints; Creation of Procedures & Protocols; and Commitment to Common Goals). For medical research and community health interventions, this framework emphasizes the need for collaborative, transparent, and culturally sensitive methodologies that can enhance the general public’s engagement. By nurturing authentic partnerships and utilizing community expertise, this framework for community-engaged health research seeks to improve public participation, foster trust, ensure ethical practices, and ultimately realize significant health outcomes for the public and scientific community.
使社区成员参与与健康有关的研究和干预措施
21世纪以来,公共卫生干预规划和开展临床研究的格局发生了很大变化,自COVID-19大流行以来发生了深刻的变化。然而,一个基本的、往往具有挑战性的、但受到破坏的方面是公众参与医学研究或社区卫生干预。这篇社论强调了让社区成员参与临床研究或公共卫生干预以增强其相关性、有效性和可持续性的重要意义。我们介绍了一个基于六个基本领域的框架,称为“六个c”(即成分&;连接;沟通,信任的培养;文化能力;行为准则;背景、容量&;约束;程序的创建&;协议;和对共同目标的承诺)。对于医学研究和社区卫生干预措施,该框架强调需要协作、透明和对文化敏感的方法,以加强公众的参与。通过培养真正的伙伴关系和利用社区专业知识,这一社区参与卫生研究的框架旨在提高公众参与,培养信任,确保道德实践,并最终为公众和科学界实现重大的卫生成果。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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