Engaging Underserved Populations in Health Preference Research: Challenges and Strategies.

IF 3.1 3区 医学 Q1 HEALTH CARE SCIENCES & SERVICES
Paula Sinead Donnelly, Divya Mohan, Hannah Penton, Emily Wilson, Marco Boeri
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引用次数: 0

Abstract

Health preference research plays a critical role in shaping healthcare policy and decision-making; however the underrepresentation of underserved populations challenges the validity and reliability of preference estimates. Despite efforts to diversify recruitment, health preference studies often have limited demographic diversity and non-representative sampling, leading to potentially biased findings that overlook the preferences of underserved populations. We discuss the importance of engaging underserved populations in health preference research from both ethical and research perspectives. We identify key challenges to the inclusion of underserved groups and outline strategies to address them, illustrating these with examples where possible. By prioritising inclusive and flexible methodologies, health preference researchers can generate more representative data, ensuring that estimates reflect the diverse needs and values of all populations. Ultimately, these efforts will support the development of more equitable, evidence-based, and impactful healthcare policies.

在健康偏好研究中参与服务不足人群:挑战和策略。
健康偏好研究在制定医疗政策和决策中发挥着关键作用;然而,服务不足人群的代表性不足对偏好估计的有效性和可靠性提出了挑战。尽管努力使招募多样化,但健康偏好研究往往具有有限的人口多样性和非代表性的抽样,导致潜在的有偏见的发现,忽视了服务不足人群的偏好。我们从伦理和研究的角度讨论了让服务不足的人群参与健康偏好研究的重要性。我们确定了纳入服务不足群体的主要挑战,并概述了解决这些挑战的策略,并尽可能举例说明这些挑战。通过优先采用包容性和灵活的方法,健康偏好研究人员可以产生更具代表性的数据,确保估算反映所有人群的不同需求和价值观。最终,这些努力将支持制定更加公平、循证和有影响力的医疗保健政策。
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来源期刊
Patient-Patient Centered Outcomes Research
Patient-Patient Centered Outcomes Research HEALTH CARE SCIENCES & SERVICES-
CiteScore
6.60
自引率
8.30%
发文量
44
审稿时长
>12 weeks
期刊介绍: The Patient provides a venue for scientifically rigorous, timely, and relevant research to promote the development, evaluation and implementation of therapies, technologies, and innovations that will enhance the patient experience. It is an international forum for research that advances and/or applies qualitative or quantitative methods to promote the generation, synthesis, or interpretation of evidence. The journal has specific interest in receiving original research, reviews and commentaries related to qualitative and mixed methods research, stated-preference methods, patient reported outcomes, and shared decision making. Advances in regulatory science, patient-focused drug development, patient-centered benefit-risk and health technology assessment will also be considered. Additional digital features (including animated abstracts, video abstracts, slide decks, audio slides, instructional videos, infographics, podcasts and animations) can be published with articles; these are designed to increase the visibility, readership and educational value of the journal’s content. In addition, articles published in The Patient may be accompanied by plain language summaries to assist readers who have some knowledge of, but not in-depth expertise in, the area to understand important medical advances. All manuscripts are subject to peer review by international experts.
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