The Case for Structured Data in Developmental-Behavioral Pediatrics: Project STANDARD (Structured Approach to Neurodevelopmental Care and Clinical Research Data).

IF 1.8 3区 医学 Q3 BEHAVIORAL SCIENCES
William Barbaresi, Yair Bannett, Nathan J Blum, Shang Chee Chong, Justice Clark, Magdalena Dall, Jeffery N Epstein, Johannes Fellinger, Tanya E Froehlich, Johannes Hofer, Daniel Holzinger, Patty Huang, YingQi Kang, Ramkumar Aishworiya, Marie Reilly, Ann M Reynolds, Gehan Roberts, George Sideridis, Deanna Swain, Carol Weitzman
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引用次数: 0

Abstract

Abstract: Neurodevelopmental and behavioral problems (NBPs) such as attention-deficit hyperactivity disorder and autism spectrum disorder are highly prevalent in children and adolescents. Clinical care for NBPs is characterized by unwarranted variation, a limited number of systematic approaches to measuring outcomes and evidence-based treatments, and significant challenges to conducting large, longitudinal clinical research studies. Clinical documentation of care provided to children with NBPs can be lengthy and time-consuming, lacks standardization, and often does not include precise details about clinically and scientifically important information (e.g., diagnostic criteria, services provided, response to treatment). The lack of standardization and missing data limit the utility of clinical documentation to support clinical research and quality improvement.

发育行为儿科学结构化数据案例:项目标准(神经发育护理和临床研究数据的结构化方法)。
摘要/ Abstract摘要:注意缺陷多动障碍和自闭症谱系障碍等神经发育和行为问题在儿童和青少年中非常普遍。nbp的临床护理的特点是无根据的变化,有限数量的系统方法来衡量结果和循证治疗,以及进行大型纵向临床研究的重大挑战。向患有神经性障碍的儿童提供的护理的临床文件可能冗长而耗时,缺乏标准化,并且通常不包括关于临床和科学重要信息的精确细节(例如,诊断标准、提供的服务、对治疗的反应)。缺乏标准化和缺失的数据限制了临床文献的效用,以支持临床研究和质量改进。
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来源期刊
CiteScore
3.10
自引率
8.30%
发文量
155
审稿时长
6-12 weeks
期刊介绍: Journal of Developmental & Behavioral Pediatrics (JDBP) is a leading resource for clinicians, teachers, and researchers involved in pediatric healthcare and child development. This important journal covers some of the most challenging issues affecting child development and behavior.
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