The Case for Structured Data in Developmental-Behavioral Pediatrics: Project STANDARD (Structured Approach to Neurodevelopmental Care and Clinical Research Data).
William Barbaresi, Yair Bannett, Nathan J Blum, Shang Chee Chong, Justice Clark, Magdalena Dall, Jeffery N Epstein, Johannes Fellinger, Tanya E Froehlich, Johannes Hofer, Daniel Holzinger, Patty Huang, YingQi Kang, Ramkumar Aishworiya, Marie Reilly, Ann M Reynolds, Gehan Roberts, George Sideridis, Deanna Swain, Carol Weitzman
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引用次数: 0
Abstract
Abstract: Neurodevelopmental and behavioral problems (NBPs) such as attention-deficit hyperactivity disorder and autism spectrum disorder are highly prevalent in children and adolescents. Clinical care for NBPs is characterized by unwarranted variation, a limited number of systematic approaches to measuring outcomes and evidence-based treatments, and significant challenges to conducting large, longitudinal clinical research studies. Clinical documentation of care provided to children with NBPs can be lengthy and time-consuming, lacks standardization, and often does not include precise details about clinically and scientifically important information (e.g., diagnostic criteria, services provided, response to treatment). The lack of standardization and missing data limit the utility of clinical documentation to support clinical research and quality improvement.
期刊介绍:
Journal of Developmental & Behavioral Pediatrics (JDBP) is a leading resource for clinicians, teachers, and researchers involved in pediatric healthcare and child development. This important journal covers some of the most challenging issues affecting child development and behavior.