Ting Lu, Junxia Xu, Qingrong Cao, Jing Zhang, Jian Chen, Lin Lin, Benjie Shan, Jie Wei
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引用次数: 0
Abstract
This study aimed to develop and validate a culturally adapted, nurse-led shared decision-making question prompt list (SDM-QPL) to enhance decision-making support for Chinese breast cancer patients considering clinical trials. A mixed-methods approach was employed, involving a systematic literature review (52 studies), semi-structured interviews with 15 patients and 8 healthcare providers, a three-round Delphi consensus with 13 experts, and psychometric testing. The process yielded a 40-item QPL tailored to cultural needs, such as familial decision-making and Traditional Chinese Medicine (TCM) use. The SDM-QPL, organized into five modules, achieved strong expert consensus (Kendall's W = 0.82, P < 0.001) and retained 92% of nurse-sensitive items. Psychometric evaluation confirmed high validity (S-CVI/Ave = 0.89) and reliability (Cronbach's α = 0.91). Qualitative analysis identified key barriers: information overload (93.3%), risk misperceptions (86.7%), and nursing communication gaps (80.0%). This nurse-led SDM-QPL, grounded in Elwyn's Three-Talk Model, addresses China's unique cultural and structural challenges, fostering triadic dialogue among patients, families, and providers. The tool empowers oncology nurses to bridge communication gaps, improve trial participation equity, and support patient-centered care in collectivist settings.
本研究旨在开发和验证一种文化适应性的、护士主导的共享决策问题提示列表（SDM-QPL），以增强对考虑临床试验的中国乳腺癌患者的决策支持。采用混合方法，包括系统文献综述（52项研究），对15名患者和8名医疗保健提供者进行半结构化访谈，与13名专家进行三轮德尔菲共识，以及心理测量测试。这个过程产生了一个40个项目的QPL，根据文化需求量身定制，比如家庭决策和中医（TCM）的使用。SDM-QPL分为五个模块，获得了强有力的专家共识(Kendall's W = 0.82， P
期刊介绍：
The Journal of Cancer Education, the official journal of the American Association for Cancer Education (AACE) and the European Association for Cancer Education (EACE), is an international, quarterly journal dedicated to the publication of original contributions dealing with the varied aspects of cancer education for physicians, dentists, nurses, students, social workers and other allied health professionals, patients, the general public, and anyone interested in effective education about cancer related issues.
Articles featured include reports of original results of educational research, as well as discussions of current problems and techniques in cancer education. Manuscripts are welcome on such subjects as educational methods, instruments, and program evaluation. Suitable topics include teaching of basic science aspects of cancer; the assessment of attitudes toward cancer patient management; the teaching of diagnostic skills relevant to cancer; the evaluation of undergraduate, postgraduate, or continuing education programs; and articles about all aspects of cancer education from prevention to palliative care.
We encourage contributions to a special column called Reflections; these articles should relate to the human aspects of dealing with cancer, cancer patients, and their families and finding meaning and support in these efforts.
Letters to the Editor (600 words or less) dealing with published articles or matters of current interest are also invited.
Also featured are commentary; book and media reviews; and announcements of educational programs, fellowships, and grants.
Articles should be limited to no more than ten double-spaced typed pages, and there should be no more than three tables or figures and 25 references. We also encourage brief reports of five typewritten pages or less, with no more than one figure or table and 15 references.
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