Janislei Soares Dantas, Tiago José Silveira Teófilo, Sergio Vital da Silva Junior, Natalia Claudino Do Nascimento, Rafaelly Andressa de Lucena Eloy, Ana Cristina de Oliveira E Silva, Maria Eliane Moreira Freire
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引用次数: 0
Abstract
Purpose: The aim of this scoping review was to identify validated instruments measuring Patient-Reported Outcome Measures (PROMs) used in research and clinical practice that are deigned to measure the health-related quality of life (HRQoL) of people with chronic wounds.
Method: Scoping literature review.
Search strategy: A search of the electronic databases MEDLINE, PubMed, CINAHL, Web of Science, and Scopus that spanned the years 1990 to April 2024 was conducted. The initial search resulted in 13 094 records. Removal of duplicates, title and abstract searches, and final selection of elements that were read in full yielded 30 records, along with 2 records identified from reference lists of critical articles.
Findings: Twelve validated instruments measuring PROMs assessing HRQoL were identified; 6 were generic and 6 were specific to chronic wounds. The most frequently used generic instruments were the Short Form 36 Health Survey Questionnaire and the EuroQol-five Dimensions-Five levels; they were used in 6 (18.8%) and 3 (9.4%) studies, respectively. The Cardiff Wound Impact Schedule and the Wound-Qol were the most frequently wound-specific instruments; both were applied in 5 (15.6%) studies each. Both condition-specific and generic instruments measure 1 or more conceptual domains that cover the multidimensionality of HRQoL. Generic instruments allow comparison of persons with chronic wounds to populations with other chronic conditions and the general population; however, generic instruments may underestimate changes in QoL in populations with chronic wounds. Condition-specific instruments provide additional information about HRQoL and they are more likely to be responsive to the effects of specific interventions.
Implications: Research related to instruments that measure PROMs for HRQoL for patients with chronic wounds is limited. Additional research such as longitudinal and randomized studies are needed to strengthen the evidence regarding the applicability and dissemination of PROMS to assess HRQoL in this population.
目的：本综述的目的是确定研究和临床实践中用于测量慢性伤口患者健康相关生活质量（HRQoL）的患者报告结果测量（PROMs）的有效工具。方法：文献综述。检索策略：对1990年至2024年4月的MEDLINE、PubMed、CINAHL、Web of Science、Scopus等电子数据库进行检索。最初的搜索结果是13094条记录。删除重复项，标题和摘要搜索，以及最终选择被完整阅读的元素，产生30条记录，以及从关键文章的参考列表中确定的2条记录。结果：共鉴定出12种经验证的测量PROMs评估HRQoL的仪器；6例为一般伤口，6例为慢性伤口。最常用的通用工具是简表36健康调查问卷和euroqol五维度五水平；它们分别用于6项（18.8%）和3项（9.4%）研究。Cardiff伤口冲击表和Wound- qol是最常见的伤口特异性工具；两种方法各应用于5项研究（15.6%）。条件特定工具和通用工具都测量覆盖HRQoL多维度的1个或多个概念域。通用工具可以将慢性伤口患者与患有其他慢性病的人群和一般人群进行比较；然而，通用仪器可能低估了慢性伤口患者生活质量的变化。特定条件的工具提供了关于HRQoL的额外信息，它们更有可能对特定干预措施的效果作出反应。意义：测量慢性伤口患者HRQoL的PROMs仪器的研究是有限的。需要进一步的研究，如纵向和随机研究，以加强证据关于PROMS的适用性和传播，以评估该人群的HRQoL。
期刊介绍：
The Journal of Wound, Ostomy and Continence Nursing (JWOCN), the official journal of the Wound, Ostomy and Continence Nurses Society™ (WOCN®), is the premier publication for wound, ostomy and continence practice and research. The Journal’s mission is to publish current best evidence and original research to guide the delivery of expert health care.
The WOCN Society is a professional nursing society which supports its members by promoting educational, clinical and research opportunities to advance the practice and guide the delivery of expert health care to individuals with wounds, ostomies and continence care needs.
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