Psychosocial adaptation following spinal cord injury: Perspectives of people with lived experience.

IF 1.9 4区医学 Q3 PSYCHOLOGY, CLINICAL

Rehabilitation Psychology Pub Date : 2025-05-12 DOI:10.1037/rep0000616

Linda Ehrlich-Jones, Jennifer Burns, Katherine Kaufman, Angelika Kudla, Allen Heinemann

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引用次数: 0

Abstract

Purpose/objective: This study sought to identify common mental health-related concerns of people living with spinal cord injury (SCI) and define strategies that can mitigate adverse circumstances.

Research method/design: We organized three focus groups of persons living with SCI (N = 5, 6, and 5, respectively) and recruited participants using a research registry and social media. We conducted focus groups via Webex, which lasted 60-90 min. We used discussion guides that an advisory committee, composed of persons with SCI and health care providers, reviewed and revised. A professional service transcribed Webex audio recordings. We used NVivo Pro 12 to code the transcripts for thematic analysis.

Results: Sixteen persons with SCI (six men, 10 women; M = 48 years) residing in Midwestern and Atlantic coast states participated. Eighty-one percent sustained SCI 2 or more years earlier, 69% sustained paraplegia, and 69% had incomplete injuries. Participants described feelings of anger/frustration, social isolation/loneliness, and depression as mental health challenges, in addition to developing identity as a person with a disability and timing of supportive mental health services such as SCI peer mentors.

Conclusions/implications: Persons with SCI identified the need for improved access to community resources as well as mental health services. The findings can guide the development of practice recommendations and resources for rehabilitation professionals and mental health providers. (PsycInfo Database Record (c) 2025 APA, all rights reserved).

查看原文本刊更多论文

脊髓损伤后的社会心理适应：有生活经验的人的观点。

目的/目的：本研究旨在确定脊髓损伤（SCI）患者常见的精神健康相关问题，并确定可以减轻不利情况的策略。研究方法/设计：我们组织了三个SCI患者焦点小组（N = 5、6和5），并通过研究注册表和社交媒体招募参与者。我们通过Webex进行焦点小组讨论，持续60-90分钟。我们使用由脊髓损伤患者和医疗保健提供者组成的咨询委员会审查和修改的讨论指南。专业服务转录了Webex的音频记录。我们使用NVivo Pro 12对转录本进行编码以进行主题分析。结果：脊髓损伤16例(男6例，女10例；M = 48岁)居住在中西部和大西洋沿岸各州。81%的人在2年或更长时间之前遭受脊髓损伤，69%的人遭受截瘫，69%的人遭受不完全性损伤。参与者将愤怒/沮丧、社会孤立/孤独和抑郁的感觉描述为心理健康挑战，此外还发展了作为残疾人的身份和获得支持性心理健康服务（如SCI同伴导师）的时机。结论/意义：脊髓损伤患者认为需要改善获得社区资源和精神卫生服务的机会。研究结果可以指导康复专业人员和心理健康提供者的实践建议和资源的开发。（PsycInfo Database Record (c) 2025 APA，版权所有）。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Rehabilitation Psychology Multiple-

CiteScore

4.80

自引率

7.40%

发文量

期刊介绍： Rehabilitation Psychology is a quarterly peer-reviewed journal that publishes articles in furtherance of the mission of Division 22 (Rehabilitation Psychology) of the American Psychological Association and to advance the science and practice of rehabilitation psychology. Rehabilitation psychologists consider the entire network of biological, psychological, social, environmental, and political factors that affect the functioning of persons with disabilities or chronic illness. Given the breadth of rehabilitation psychology, the journal"s scope is broadly defined.