Self-management interventions involving care partners of individuals with neurodegenerative movement disorders: a scoping review.

IF 2.1 4区医学 Q1 REHABILITATION

Disability and Rehabilitation Pub Date : 2025-04-28 DOI:10.1080/09638288.2025.2496784

Olivia Crozier, Stephanie R Cimino, Liliana Alvarez, Andrew M Johnson, Jeff D Holmes

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引用次数: 0

Abstract

Purpose: This scoping review aims to explore the components of existing self-management interventions involving care partners of individuals with neurodegenerative movement disorders (NMDs). The review seeks to describe the key components, categorize different types and approaches using the PRISMS taxonomy.

Methods: A comprehensive search was conducted in five databases: SCOPUS, CINAHL, MEDLINE, PsycINFO, and Embase. Articles were included if they involved self-management interventions for adult care partners of individuals with NMDs. Data extraction was guided by the PRISMS, TEDSS and TIDieR frameworks, focusing on intervention characteristics, components, outcome measures, theories, and formats.

Results: The review included 34 articles, with most interventions targeting Parkinson's Disease. Interventions varied widely in structure, delivery format, setting and content. Psychological and internal strategies were the most frequently utilized components. Notably, only 11 interventions were specifically designed for care partners.

Conclusion: This scoping review provides key insights into the diverse elements of self-management interventions for NMDs, including their structure, delivery format, and components. It highlights the lack of comprehensive dyadic interventions that support both individuals with NMDs and their care partners. Future research should explore the integration of personalization, communication training and dyadic coping strategies.

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涉及神经退行性运动障碍患者护理伙伴的自我管理干预：范围综述。

目的：本综述旨在探讨涉及神经退行性运动障碍（NMDs）患者护理伙伴的现有自我管理干预措施的组成部分。该综述试图描述关键组成部分，使用prism分类法对不同类型和方法进行分类。方法：综合检索SCOPUS、CINAHL、MEDLINE、PsycINFO、Embase 5个数据库。涉及nmd患者成人护理伙伴自我管理干预的文章被纳入。数据提取以prism、TEDSS和TIDieR框架为指导，重点关注干预特征、成分、结果测量、理论和格式。结果：该综述包括34篇文章，大多数干预措施针对帕金森病。干预措施在结构、交付形式、环境和内容方面差别很大。心理和内部策略是最常用的组成部分。值得注意的是，只有11项干预措施是专门为护理伙伴设计的。结论：这一范围综述为nmd自我管理干预的不同要素提供了关键见解，包括其结构、交付形式和组成部分。它强调缺乏对nmd患者及其护理伙伴提供支持的综合双干预措施。未来的研究应探索个性化、沟通培训和二元应对策略的整合。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Disability and Rehabilitation 医学-康复医学

CiteScore

5.00

自引率

9.10%

发文量

415

审稿时长

3-6 weeks

期刊介绍： Disability and Rehabilitation along with Disability and Rehabilitation: Assistive Technology are international multidisciplinary journals which seek to encourage a better understanding of all aspects of disability and to promote rehabilitation science, practice and policy aspects of the rehabilitation process.