{"title":"Walking and Talking, Rocking and Rolling: Moral Visibility in Contexts of Technology Development.","authors":"Ashley Shew, Janna van Grunsven","doi":"10.1353/ken.2024.a958992","DOIUrl":null,"url":null,"abstract":"<p><p>Many technologies that are purportedly developed to improve the lives of disabled people reflect an ableist ideology that devalues rather than supports disabled bodyminds. In this paper we attribute this tendency to a neurotypical form of perception that obscures disabled people's moral visibility, understood as their visibility as richly expressive and interaction-worthy sense-making individuals. Relying heavily on examples drawn from scholarship on and community with augmentative and alternative communication technology (AAC tech)-that is, communication technology designed for and used by nonspeaking people-we take the expressive bodies and voices of disabled people as well as technology's role in forming expressivity and voice as important loci for redressing neurotypical ableist perceptions widely embedded in practices of engineering and science. Through our AAC tech discussion, we map different modes and degrees of moral (in)visibility, offering this mapping as an analytic resource for technologists committed to anti-ableist technology. Additionally, we also trace how technologies can be used and tinkered with in ways that can open up more (neuro)expansive, diversity-embracing ways of perceiving disabled lives. Ultimately, our account aims to motivate technologists to embrace such an expansive approach. We conclude by tentatively indicating some ways in which this approach can be operationalized in engineering and science practices.</p>","PeriodicalId":46167,"journal":{"name":"Kennedy Institute of Ethics Journal","volume":"34 2","pages":"155-190"},"PeriodicalIF":1.1000,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Kennedy Institute of Ethics Journal","FirstCategoryId":"98","ListUrlMain":"https://doi.org/10.1353/ken.2024.a958992","RegionNum":4,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q3","JCRName":"ETHICS","Score":null,"Total":0}
引用次数: 0
Abstract
Many technologies that are purportedly developed to improve the lives of disabled people reflect an ableist ideology that devalues rather than supports disabled bodyminds. In this paper we attribute this tendency to a neurotypical form of perception that obscures disabled people's moral visibility, understood as their visibility as richly expressive and interaction-worthy sense-making individuals. Relying heavily on examples drawn from scholarship on and community with augmentative and alternative communication technology (AAC tech)-that is, communication technology designed for and used by nonspeaking people-we take the expressive bodies and voices of disabled people as well as technology's role in forming expressivity and voice as important loci for redressing neurotypical ableist perceptions widely embedded in practices of engineering and science. Through our AAC tech discussion, we map different modes and degrees of moral (in)visibility, offering this mapping as an analytic resource for technologists committed to anti-ableist technology. Additionally, we also trace how technologies can be used and tinkered with in ways that can open up more (neuro)expansive, diversity-embracing ways of perceiving disabled lives. Ultimately, our account aims to motivate technologists to embrace such an expansive approach. We conclude by tentatively indicating some ways in which this approach can be operationalized in engineering and science practices.
期刊介绍:
The Kennedy Institute of Ethics Journal offers a scholarly forum for diverse views on major issues in bioethics, such as analysis and critique of principlism, feminist perspectives in bioethics, the work of the Advisory Committee on Human Radiation Experiments, active euthanasia, genetics, health care reform, and organ transplantation. Each issue includes "Scope Notes," an overview and extensive annotated bibliography on a specific topic in bioethics, and "Bioethics Inside the Beltway," a report written by a Washington insider updating bioethics activities on the federal level.