"I would love to say it's the fatigue but honestly it's not": Into Adulthood with Chronic Fatigue Syndrome/Myalgic Encephalomyelitis.

IF 2.3 3区医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH

Psychology Health & Medicine Pub Date : 2025-04-24 DOI:10.1080/13548506.2025.2495891

A Tenhave, R Bognar, A Sidis

{"title":"\"I would love to say it's the fatigue but honestly it's not\": Into Adulthood with Chronic Fatigue Syndrome/Myalgic Encephalomyelitis.","authors":"A Tenhave, R Bognar, A Sidis","doi":"10.1080/13548506.2025.2495891","DOIUrl":null,"url":null,"abstract":"<p><p>Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME) is a debilitating and poorly understood condition which interferes with adolescents' typical development. This study aimed to explore the experience of transitioning into adulthood from the perspective of adolescents and young adults (16-25yo) with CFS/ME. Thirteen young people recruited through a community allied health clinic in Victoria, Australia, participated in semi-structured interviews. Interviews were analysed using reflexive thematic analysis and produced the following themes: Independence: a different path or an inaccessible adulthood? Identity: who could I have been? Isolation and disconnection: being with people but not being like them. Our analysis of these themes suggests several avenues to support young people with CFS/ME and their families. Mental health professionals may have a specific role in helping foster assertiveness and confidence, assisting identity exploration and understanding, and supporting families in helping their adolescent to continue to develop psychologically.</p>","PeriodicalId":54535,"journal":{"name":"Psychology Health & Medicine","volume":" ","pages":"1-19"},"PeriodicalIF":2.3000,"publicationDate":"2025-04-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Psychology Health & Medicine","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1080/13548506.2025.2495891","RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q2","JCRName":"PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH","Score":null,"Total":0}

引用次数: 0

Abstract

Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME) is a debilitating and poorly understood condition which interferes with adolescents' typical development. This study aimed to explore the experience of transitioning into adulthood from the perspective of adolescents and young adults (16-25yo) with CFS/ME. Thirteen young people recruited through a community allied health clinic in Victoria, Australia, participated in semi-structured interviews. Interviews were analysed using reflexive thematic analysis and produced the following themes: Independence: a different path or an inaccessible adulthood? Identity: who could I have been? Isolation and disconnection: being with people but not being like them. Our analysis of these themes suggests several avenues to support young people with CFS/ME and their families. Mental health professionals may have a specific role in helping foster assertiveness and confidence, assisting identity exploration and understanding, and supporting families in helping their adolescent to continue to develop psychologically.

查看原文本刊更多论文

“我很想说这是疲劳，但老实说，它不是”：成年慢性疲劳综合征/肌痛性脑脊髓炎。

慢性疲劳综合征/肌痛性脑脊髓炎（CFS/ME）是一种使人衰弱且知之甚少的疾病，它干扰了青少年的典型发育。本研究旨在从青少年和年轻成人（16-25岁）的角度探讨CFS/ME的成年过渡体验。通过澳大利亚维多利亚州的一家社区联合保健诊所招募的13名年轻人参加了半结构化面试。使用反身性主题分析对访谈进行分析，并得出以下主题：独立：不同的道路还是难以接近的成年？身份：我可能是谁？孤立和脱节：与人在一起，但不像他们。我们对这些主题的分析提出了支持慢性疲劳综合症/慢性疲劳综合症青年及其家庭的几种途径。心理健康专业人员可能在帮助培养自信和自信，协助探索和理解身份，以及支持家庭帮助青少年继续发展心理方面发挥特殊作用。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

求助全文

约1分钟内获得全文求助全文

来源期刊

Psychology Health & Medicine PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH-

CiteScore

6.20

自引率

0.00%

发文量

200

审稿时长

6-12 weeks

期刊介绍： Psychology, Health & Medicine is a multidisciplinary journal highlighting human factors in health. The journal provides a peer reviewed forum to report on issues of psychology and health in practice. This key publication reaches an international audience, highlighting the variation and similarities within different settings and exploring multiple health and illness issues from theoretical, practical and management perspectives. It provides a critical forum to examine the wide range of applied health and illness issues and how they incorporate psychological knowledge, understanding, theory and intervention. The journal reflects the growing recognition of psychosocial issues as they affect health planning, medical care, disease reaction, intervention, quality of life, adjustment adaptation and management. For many years theoretical research was very distant from applied understanding. The emerging movement in health psychology, changes in medical care provision and training, and consumer awareness of health issues all contribute to a growing need for applied research. This journal focuses on practical applications of theory, research and experience and provides a bridge between academic knowledge, illness experience, wellbeing and health care practice.