Marie Hooper, Hiba Al-Hakeem, Shona Casola, Alex Elkader, Mary E Desrocher, Shannon E Scratch
{"title":"Adapting and providing a virtual psychosocial intervention<i>, iSibWorks</i>, for siblings of youth with disabilities, a qualitative acceptability study.","authors":"Marie Hooper, Hiba Al-Hakeem, Shona Casola, Alex Elkader, Mary E Desrocher, Shannon E Scratch","doi":"10.1080/09638288.2025.2493220","DOIUrl":null,"url":null,"abstract":"<p><strong>Purpose: </strong>The objectives included: (1) Adapt the <i>SibWorks</i> group intervention for use on a virtual platform with siblings; and (2) Assess the acceptability of the adapted intervention, <i>iSibWorks</i>.</p><p><strong>Materials and methods: </strong>Participants were youth aged 8 to 12 years who had a sibling with a disability, and their caregivers. <i>iSibWorks</i> was implemented with siblings on a weekly basis for six weeks. Sessions were conducted using Zoom for Healthcare and lasted approximately 60 min each. One week after the final session, siblings and their caregivers were invited to participate in separate semi-structured interviews. Qualitative content analysis of interview transcripts was utilized to assess intervention acceptability.</p><p><strong>Results: </strong>Adapting <i>SibWorks</i> to <i>iSibWorks</i> was achieved. Three categories were developed based on sibling and caregiver feedback. First, participants shared their satisfaction with the delivery of <i>iSibWorks</i>, reporting enjoyable experiences and valuing its interactive design. Next, participants perceived their involvement in the intervention as beneficial, due to opportunities to connect with others, learn applicable coping strategies, and improve self-esteem and mood. Finally, participants provided suggestions regarding the intervention's future delivery, content, and participation.</p><p><strong>Conclusions: </strong><i>iSibWorks</i> is an acceptable virtual group intervention for siblings of youth with a disability. Families noted positive experiences and perceived benefits with intervention participation.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"1-11"},"PeriodicalIF":2.1000,"publicationDate":"2025-04-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Disability and Rehabilitation","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1080/09638288.2025.2493220","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q1","JCRName":"REHABILITATION","Score":null,"Total":0}
引用次数: 0
Abstract
Purpose: The objectives included: (1) Adapt the SibWorks group intervention for use on a virtual platform with siblings; and (2) Assess the acceptability of the adapted intervention, iSibWorks.
Materials and methods: Participants were youth aged 8 to 12 years who had a sibling with a disability, and their caregivers. iSibWorks was implemented with siblings on a weekly basis for six weeks. Sessions were conducted using Zoom for Healthcare and lasted approximately 60 min each. One week after the final session, siblings and their caregivers were invited to participate in separate semi-structured interviews. Qualitative content analysis of interview transcripts was utilized to assess intervention acceptability.
Results: Adapting SibWorks to iSibWorks was achieved. Three categories were developed based on sibling and caregiver feedback. First, participants shared their satisfaction with the delivery of iSibWorks, reporting enjoyable experiences and valuing its interactive design. Next, participants perceived their involvement in the intervention as beneficial, due to opportunities to connect with others, learn applicable coping strategies, and improve self-esteem and mood. Finally, participants provided suggestions regarding the intervention's future delivery, content, and participation.
Conclusions: iSibWorks is an acceptable virtual group intervention for siblings of youth with a disability. Families noted positive experiences and perceived benefits with intervention participation.
目的:目标包括:(1)调整SibWorks小组干预,以便在兄弟姐妹的虚拟平台上使用;(2)评估经过调整的干预措施iSibWorks的可接受性。材料和方法:参与者为8至12岁的有残疾兄弟姐妹的青少年及其照顾者。iSibWorks每周与兄弟姐妹一起实施,持续六周。会议使用Zoom for Healthcare进行,每次持续约60分钟。在最后一次治疗一周后,兄弟姐妹和他们的照顾者被邀请参加单独的半结构化访谈。采用访谈记录的定性内容分析来评估干预的可接受性。结果:实现了SibWorks对iSibWorks的适配。根据兄弟姐妹和照顾者的反馈,开发了三个类别。首先,参与者分享了他们对iSibWorks交付的满意度,报告了愉快的体验和对其交互设计的评价。其次,参与者认为他们参与干预是有益的,因为有机会与他人联系,学习适用的应对策略,提高自尊和情绪。最后,参与者对干预措施的未来交付、内容和参与提出了建议。结论:iSibWorks对于残疾青少年的兄弟姐妹来说是一种可接受的虚拟群体干预。家庭注意到积极的经历和参与干预的好处。
期刊介绍:
Disability and Rehabilitation along with Disability and Rehabilitation: Assistive Technology are international multidisciplinary journals which seek to encourage a better understanding of all aspects of disability and to promote rehabilitation science, practice and policy aspects of the rehabilitation process.