Barriers to preventive care and medical screenings among children with Down syndrome in South Carolina as described by parents.

IF 1.2 4区医学 Q3 FAMILY STUDIES

Families Systems & Health Pub Date : 2025-05-05 DOI:10.1037/fsh0000987

Vinita Oberoi Leedom, Sonja A Rasmussen, Russell Kirby, Geoffrey I Scott, Dwayne E Porter, Daniela B Friedman

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引用次数: 0

Abstract

Introduction: Studies have evaluated the receipt of preventive care among children with Down syndrome, but barriers surrounding access to screenings and health care in general have not been well described among this population across the United States. This study describes parental perspectives on barriers to screenings and health care.

Method: Twenty-four semistructured interviews with parents of children with Down syndrome were administered to families across South Carolina in 2022. Thematic analysis was used to identify salient themes related to barriers to care.

Results: Barriers to preventive care identified by families included ineffective care coordination, insurance-related concerns, health care provider access shortages, and language barriers.

Discussion: Findings can be used to address problems with major aspects of medical care and to make care more family-centered and accessible for children with Down syndrome. (PsycInfo Database Record (c) 2025 APA, all rights reserved).

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据家长描述，南卡罗来纳州唐氏综合症儿童在预防保健和医疗筛查方面存在障碍。

研究评估了唐氏综合症儿童接受预防保健的情况，但在美国这一人群中，获得筛查和保健的障碍并没有得到很好的描述。本研究描述了父母对筛查和保健障碍的看法。方法：于2022年对南卡罗莱纳州唐氏综合症患儿家长进行24次半结构化访谈。专题分析用于确定与护理障碍有关的突出主题。结果：家庭确定的预防保健障碍包括无效的保健协调、保险相关问题、卫生保健提供者缺乏和语言障碍。讨论：研究结果可用于解决医疗保健主要方面的问题，并使唐氏综合症儿童的护理更加以家庭为中心。（PsycInfo Database Record (c) 2025 APA，版权所有）。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Families Systems & Health HEALTH CARE SCIENCES & SERVICES-PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH

CiteScore

1.50

自引率

7.70%

发文量

审稿时长

>12 weeks

期刊介绍： Families, Systems, & Health publishes clinical research, training, and theoretical contributions in the areas of families and health, with particular focus on collaborative family healthcare.