Help-seeking in A&E for Functional Neurological Disorder (FND): a mixed methods study of patient experiences of a war on two fronts.

IF 1.9 3区 心理学 Q2 PSYCHOLOGY, MULTIDISCIPLINARY
Zachary Chan, Jane Ogden, Shelley Cummings, Bethan Garner, Mohammad Arbabi
{"title":"Help-seeking in A&E for Functional Neurological Disorder (FND): a mixed methods study of patient experiences of a war on two fronts.","authors":"Zachary Chan, Jane Ogden, Shelley Cummings, Bethan Garner, Mohammad Arbabi","doi":"10.1080/08870446.2025.2491589","DOIUrl":null,"url":null,"abstract":"<p><strong>Objective: </strong>This mixed-method study aimed to i) describe characteristics of those who attend A&E frequently (FAs) with and without Functional Neurological Disorder (FND); ii) to explore patients' with FND's experiences of help-seeking in A&E.</p><p><strong>Methods and measures: </strong>First, a database of NHS FAs (10+ times in a year; <i>n</i> = 99) from one hospital was analysed. Next, FAs with FND (<i>n</i> = 6) were interviewed about their help-seeking.</p><p><strong>Results: </strong>From stage 1, 61% of all FAs were female, had visited A&E a mean of 16 times in the past 12 months and had been referred to a wide range of clinics. No significant differences were found between FND (<i>n</i> = 11) and non FND patients (<i>n</i> = 88). In Stage 2, thematic analysis described four main themes: i) 'symptom experience'; ii) 'feelings of isolation'; iii) 'Healthcare Professional (HCP) barriers to care'; iv) 'HCP perseverance'. Transcending these themes was a transition from uncertainty to judgement as patients eventually obtained a diagnosis of FND. Overarching all themes was the sense of FND as a war on two fronts as patients battled both their symptoms and the health care system.</p><p><strong>Conclusion: </strong>Help seeking for FND involves a battle which may be improved by educating HCPs and offering a specialised clinic.</p>","PeriodicalId":20718,"journal":{"name":"Psychology & Health","volume":" ","pages":"1-20"},"PeriodicalIF":1.9000,"publicationDate":"2025-04-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Psychology & Health","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1080/08870446.2025.2491589","RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q2","JCRName":"PSYCHOLOGY, MULTIDISCIPLINARY","Score":null,"Total":0}
引用次数: 0

Abstract

Objective: This mixed-method study aimed to i) describe characteristics of those who attend A&E frequently (FAs) with and without Functional Neurological Disorder (FND); ii) to explore patients' with FND's experiences of help-seeking in A&E.

Methods and measures: First, a database of NHS FAs (10+ times in a year; n = 99) from one hospital was analysed. Next, FAs with FND (n = 6) were interviewed about their help-seeking.

Results: From stage 1, 61% of all FAs were female, had visited A&E a mean of 16 times in the past 12 months and had been referred to a wide range of clinics. No significant differences were found between FND (n = 11) and non FND patients (n = 88). In Stage 2, thematic analysis described four main themes: i) 'symptom experience'; ii) 'feelings of isolation'; iii) 'Healthcare Professional (HCP) barriers to care'; iv) 'HCP perseverance'. Transcending these themes was a transition from uncertainty to judgement as patients eventually obtained a diagnosis of FND. Overarching all themes was the sense of FND as a war on two fronts as patients battled both their symptoms and the health care system.

Conclusion: Help seeking for FND involves a battle which may be improved by educating HCPs and offering a specialised clinic.

功能性神经障碍(FND)的急症室求助:一项对两条战线上的战争患者经历的混合方法研究。
目的:本混合方法研究旨在i)描述伴有和不伴有功能性神经障碍(FND)的频繁参加A&E (FAs)患者的特征;ii)了解FND患者在急症室的求助经历。方法与措施:一是建立NHS FAs数据库(每年10+次);N = 99)。接下来,对患有FND的FAs (n = 6)进行访谈,了解他们的求助情况。结果:从第一阶段开始,61%的FAs是女性,在过去的12个月里,她们平均去了16次急症室,并被转诊到各种各样的诊所。FND患者(n = 11)与非FND患者(n = 88)之间无显著差异。在第二阶段,主题分析描述了四个主要主题:“症状体验”;(二)“孤立感”;3)“医疗保健专业人员(HCP)护理障碍”;(四)“HCP毅力”。超越这些主题是一个从不确定到判断的过渡,因为患者最终获得了FND的诊断。在所有主题中,最重要的是FND是一场在两条战线上的战争,患者既要与他们的症状作斗争,也要与卫生保健系统作斗争。结论:寻求FND的帮助涉及到一场战斗,可以通过教育HCPs和提供专门的诊所来改善。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
求助全文
约1分钟内获得全文 求助全文
来源期刊
CiteScore
7.30
自引率
3.00%
发文量
95
期刊介绍: Psychology & Health promotes the study and application of psychological approaches to health and illness. The contents include work on psychological aspects of physical illness, treatment processes and recovery; psychosocial factors in the aetiology of physical illnesses; health attitudes and behaviour, including prevention; the individual-health care system interface particularly communication and psychologically-based interventions. The journal publishes original research, and accepts not only papers describing rigorous empirical work, including meta-analyses, but also those outlining new psychological approaches and interventions in health-related fields.
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
确定
请完成安全验证×
copy
已复制链接
快去分享给好友吧!
我知道了
右上角分享
点击右上角分享
0
联系我们:info@booksci.cn Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。 Copyright © 2023 布克学术 All rights reserved.
京ICP备2023020795号-1
ghs 京公网安备 11010802042870号
Book学术文献互助
Book学术文献互助群
群 号:604180095
Book学术官方微信