Identity and bodily experiences in emerging adults with type 1 diabetes (T1D): a qualitative exploration.

IF 1.9 3区心理学 Q2 PSYCHOLOGY, MULTIDISCIPLINARY

Psychology & Health Pub Date : 2025-05-08 DOI:10.1080/08870446.2025.2501065

Janne Vanderhaegen, Sara Campens, Lore Vankerckhoven, Laurence Claes, Robert Hilbrands, Koen Luyckx

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引用次数: 0

Abstract

Objective: Much remains unknown about how type 1 diabetes (T1D) affects one's identity and bodily experiences in emerging adults. Two relevant frameworks have been introduced in this respect, namely the illness identity (e.g. Oris et al.) and the experience of embodiment framework (e.g. Piran). Guided by these theoretical perspectives, this qualitative study explores identity and bodily experiences of emerging adults living with T1D.

Methods: A total of 149 participants wrote a narrative about what it means to them to have T1D and how it may have affected their sense of self and bodily experiences. Data were analysed using template analysis.

Results: Analysis generated two main themes regarding identity: illness identity and feeling different. Five main themes emerged regarding bodily experiences: body connection, body discomfort, restricted agency and functionality, attuned diabetes care, and body objectification. In addition, social support, benefit finding, openness to others, perceived stigma, and visibility of diabetes emerged as significant related themes.

Conclusion: This study highlights the specific challenges that emerging adults with T1D may face in harmonising their identity and bodily experiences with their diabetes. Clinicians should recognise these challenges in providing holistic care.

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新生成人1型糖尿病（T1D）的身份和身体体验：定性探索

目的：关于1型糖尿病（T1D）如何影响初生成人的身份和身体体验，我们仍知之甚少。在这方面已经引入了两个相关框架，即疾病身份（如Oris等人）和体现框架的经验（如Piran）。在这些理论观点的指导下，本定性研究探讨了新成年T1D患者的身份和身体体验。方法：共有149名参与者写了一篇关于患T1D对他们意味着什么以及它如何影响他们的自我意识和身体体验的叙述。数据采用模板分析法进行分析。结果：分析产生了关于身份的两个主要主题：疾病身份和感觉不同。关于身体体验的五个主要主题出现了：身体连接，身体不适，受限的代理和功能，协调糖尿病护理和身体物化。此外，社会支持、利益发现、对他人的开放、感知到的耻辱和糖尿病的可见性成为重要的相关主题。结论：这项研究强调了新成年T1D患者在协调他们的身份和身体经历与糖尿病之间的关系时可能面临的具体挑战。临床医生应该认识到提供整体护理的这些挑战。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Psychology & Health Multiple-

CiteScore

7.30

自引率

3.00%

发文量

期刊介绍： Psychology & Health promotes the study and application of psychological approaches to health and illness. The contents include work on psychological aspects of physical illness, treatment processes and recovery; psychosocial factors in the aetiology of physical illnesses; health attitudes and behaviour, including prevention; the individual-health care system interface particularly communication and psychologically-based interventions. The journal publishes original research, and accepts not only papers describing rigorous empirical work, including meta-analyses, but also those outlining new psychological approaches and interventions in health-related fields.