Study on Psychiatric Aspects, Psychosocial and Cognitive Functioning in Adolescents With Haemophilia.

IF 3 2区医学 Q2 HEMATOLOGY

Haemophilia Pub Date : 2025-04-20 DOI:10.1111/hae.70046

Hemant Choudhary, Rajesh Sagar, Tulika Seth, Rachna Bhargava, Bichitra Nanda Patra

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引用次数: 0

Abstract

Introduction: Haemophilia, an inherited bleeding disorder, impacts physical and mental health. With improving survival, the focus is on mental health issues.

Aim: We examined and compared mental health issues in adolescents with haemophilia (AwH) in India with those of healthy controls. Additionally, we examined the relationship between quality of life and these mental health issues.

Methods: Standardized assessments were applied (between 2021 and 2022) on male cases (n = 31) and controls (n = 31) to measure psychiatric morbidity, psychosocial, and neuro-cognitive functioning. Correlational analysis of quality of life with various mental health issues was also performed.

Results: AwH had more emotional, social and behavioural problems, poor quality of life, more cognitive dysfunction, with no statistically significant difference in self-esteem as compared to healthy controls. There was a significant negative correlation between the quality of life and psychiatric morbidities, emotional and behavioural problems and cognitive dysfunction.

Conclusion: These findings corroborate evidence from other countries and emphasize the need for assessment of mental health issues and integration of mental health professionals in clinical services for AwH in India.

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青少年血友病的精神病学、社会心理和认知功能研究。

血友病是一种遗传性出血性疾病，影响身体和心理健康。随着生存率的提高，人们开始关注心理健康问题。目的：我们检查并比较了印度青少年血友病患者（AwH）与健康对照组的心理健康问题。此外，我们还研究了生活质量与这些心理健康问题之间的关系。方法：对男性病例（n = 31）和对照组（n = 31）进行标准化评估（2021年至2022年），以测量精神疾病发病率、社会心理和神经认知功能。还进行了生活质量与各种心理健康问题的相关性分析。结果：与健康对照组相比，AwH患者有更多的情绪、社会和行为问题，生活质量差，更多的认知功能障碍，自尊方面无统计学差异。生活质量与精神疾病、情绪和行为问题以及认知功能障碍之间存在显著的负相关。结论：这些发现证实了来自其他国家的证据，并强调了在印度对精神卫生问题进行评估和将精神卫生专业人员纳入AwH临床服务的必要性。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Haemophilia 医学-血液学

CiteScore

6.50

自引率

28.20%

发文量

226

审稿时长

3-6 weeks

期刊介绍： Haemophilia is an international journal dedicated to the exchange of information regarding the comprehensive care of haemophilia. The Journal contains review articles, original scientific papers and case reports related to haemophilia care, with frequent supplements. Subjects covered include: clotting factor deficiencies, both inherited and acquired: haemophilia A, B, von Willebrand''s disease, deficiencies of factor V, VII, X and XI replacement therapy for clotting factor deficiencies component therapy in the developing world transfusion transmitted disease haemophilia care and paediatrics, orthopaedics, gynaecology and obstetrics nursing laboratory diagnosis carrier detection psycho-social concerns economic issues audit inherited platelet disorders.