Time, distress and the social good of palliative medicine research participation.

IF 2 4区医学 Q3 HEALTH CARE SCIENCES & SERVICES

BMJ Supportive & Palliative Care Pub Date : 2025-04-17 DOI:10.1136/spcare-2025-005471

Katharine Weetman, Cara Bailey, John I MacArtney

引用次数: 0

Abstract

Research involving patients is often subject to demanding ethical review processes to protect research participants and prevent harm or fraud. While having a robust ethical approval process is necessary, in practice, within palliative care contexts, the ethical issues and challenges raised (eg, gatekeeping) can often be detrimental to the research and, ultimately, people in need of high-quality care. We draw on evidence from our own research and others to challenge one-time-suits-all approaches to 'protect the vulnerable' in research, which, we argue, makes people in end-of-life contexts more vulnerable as their voices are at risk of being excluded.

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时间、痛苦与社会公益的姑息医学研究参与。

涉及患者的研究通常要经过严格的伦理审查程序，以保护研究参与者并防止伤害或欺诈。虽然有一个健全的伦理审批程序是必要的，但在实践中，在姑息治疗环境中，伦理问题和提出的挑战（例如，把关）往往会对研究有害，并最终对需要高质量护理的人有害。我们从自己的研究和其他研究中吸取证据，对研究中“保护弱势群体”的一劳永逸的方法提出了质疑，我们认为，这种方法使生命末期的人更容易受到伤害，因为他们的声音有被排除在外的风险。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

BMJ Supportive & Palliative Care Medicine-Medicine (miscellaneous)

CiteScore

4.60

自引率

7.40%

发文量

170

期刊介绍： Published quarterly in print and continuously online, BMJ Supportive & Palliative Care aims to connect many disciplines and specialties throughout the world by providing high quality, clinically relevant research, reviews, comment, information and news of international importance. We hold an inclusive view of supportive and palliative care research and we are able to call on expertise to critique the whole range of methodologies within the subject, including those working in transitional research, clinical trials, epidemiology, behavioural sciences, ethics and health service research. Articles with relevance to clinical practice and clinical service development will be considered for publication. In an international context, many different categories of clinician and healthcare workers do clinical work associated with palliative medicine, specialist or generalist palliative care, supportive care, psychosocial-oncology and end of life care. We wish to engage many specialties, not only those traditionally associated with supportive and palliative care. We hope to extend the readership to doctors, nurses, other healthcare workers and researchers in medical and surgical specialties, including but not limited to cardiology, gastroenterology, geriatrics, neurology, oncology, paediatrics, primary care, psychiatry, psychology, renal medicine, respiratory medicine.