Sharing Information About Infectious Diseases With Disability Group Home Communities

Abstract

Infectious disease outbreaks pose significant health risks and can exacerbate social inequalities for people with intellectual disabilities who live in group homes. Providing accessible information to these communities is crucial for managing these risks. This study, conducted during the COVID-19 pandemic in Australia (2021–2022) aimed to: (1) identify communication priorities for group home residents with intellectual disabilities during an infectious disease outbreak, and (2) develop a comprehensive, scalable strategy for effective communication during future outbreaks. The study employed a mixed-methods approach, including a scoping review of policies and academic literature; interviews with 6 group home residents, 10 support workers, and 2 disability accommodation managers; and observations in 2 group homes. Data were analysed collaboratively with project advisors, including disability sector representatives and community advocates. Additionally, a small e-Delphi study (n = 8) produced consensus recommendations for future practice. The research resulted in 19 best-practice guidelines to ensure inclusive and effective communication about infectious diseases in group home settings. Key drivers of success included capacity for accessible communication and supported decision-making, relevant policies, workload and workforce considerations, effective collaboration, accountability, and quality assurance. People with intellectual disability who live in a group home have the right to be informed during infectious disease outbreaks and to exercise autonomy based on that information. Systemic changes and meaningful engagement with all stakeholders will be essential for more effective and inclusive health communication during future outbreak events.