P059 Insights across conditions: experiences of diagnosis, treatment and living well with arthritis from a large UK-wide survey

IF 4.7 2区医学 Q1 RHEUMATOLOGY

Rheumatology Pub Date : 2025-04-28 DOI:10.1093/rheumatology/keaf142.101

Victoria Arno, Michael Li, Karen Hodgson

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引用次数: 0

Abstract

Background/Aims Versus Arthritis is the UK’s largest charity dedicated to supporting people with arthritis. In this work, we aimed to gather quantitative data through a UK-wide survey to give a broad view of the perspectives of people with any type of arthritis condition(s). This included people who may not have engaged with healthcare systems in relation to their arthritis, or those yet to receive a formal diagnosis. Our work aims to explore both the differences and similarities in experiences across this population. A more detailed understanding of the experience of those with arthritis is crucial to identifying inequalities between groups. Methods Between June-August 2024, we commissioned YouGov to run a 15-minute online survey of adults living with arthritis in the United Kingdom, gathering insights into the experiences of getting a diagnosis, treatment and living with arthritis. The sample was recruited via YouGov’s population panel, with additional participants recruited via Versus Arthritis’ networks and advertising. This was a charity-led study using a self-referred anonymous questionnaire, and the NHS REC online tool confirms NHS ethical approval was not required. Participant consent was obtained and data are presented following best practice to ensure participants are non-identifiable. Results All analysis was undertaken by Versus Arthritis. After applying weighting, there were 7,928 respondents to the survey. 5,888 were recruited via YouGov’s panel and 2,040 from Versus Arthritis’ networks. The weighted sample was 59% (4,655) female, with an age breakdown of: 3% (238) aged 18-44, 48% (3,816) aged 45-64, and 49% (3,875) over 65. 84% lived in England (6,653), 8.5% in Scotland (673), 4.8% (380) in Wales and 2.8% (222) in Northern Ireland. In terms of arthritis conditions among respondents, 86% (6,783) reported osteoarthritis, 8% (664) rheumatoid arthritis, 4% (313) psoriatic arthritis, and 7% (594) gout or calcium crystal diseases. 3% (272) reported another arthritis condition and 9% (695) reported having an arthritis condition but did not know which condition it was. 1,525 people (16%) reported having more than one arthritis condition; of which 238 people have three or more arthritis conditions. Conclusion The data have been weighted by age, gender and type of arthritis condition to ensure a representative spread of people with arthritis in the UK. Further analysis is being undertaken of these data and we will describe and compare experiences by condition and demographics. We will consider both experiences of interacting with healthcare services alongside a wider view of the impact of arthritis on people’s lives. Funding: This survey was funded by Versus Arthritis. Disclosure V. Arno: None. M. Li: None. K. Hodgson: None.

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跨条件的洞察：来自英国范围内的一项大型调查的关节炎的诊断、治疗和生活经验

反关节炎是英国最大的慈善机构，致力于支持关节炎患者。在这项工作中，我们旨在通过英国范围内的调查收集定量数据，以对患有任何类型关节炎的人的观点有一个广泛的看法。这包括那些可能没有与医疗保健系统接触的人，或者那些尚未接受正式诊断的人。我们的工作旨在探索这一人群在经历上的异同。更详细地了解关节炎患者的经历对于确定群体之间的不平等至关重要。在2024年6月至8月期间，我们委托YouGov对英国患有关节炎的成年人进行了一项15分钟的在线调查，收集有关关节炎诊断、治疗和生活经历的见解。样本是通过YouGov的人口小组招募的，其他参与者是通过Versus Arthritis的网络和广告招募的。这是一项由慈善机构主导的研究，使用了一份自我参考的匿名问卷，NHS REC在线工具确认不需要NHS伦理批准。获得了参与者的同意，并按照最佳实践提供了数据，以确保参与者不可识别。结果所有分析均由Versus Arthritis进行。在加权后，共有7928名受访者参与了调查。5888人是通过YouGov的小组招募的，2040人是从Versus Arthritis的网络招募的。加权样本中59%（4,655）为女性，年龄细分为：18-44岁占3%(238)，45-64岁占48%(3,816)，65岁以上占49%（3,875）。84%居住在英格兰（6653人），8.5%居住在苏格兰（673人），4.8%居住在威尔士（380人），2.8%居住在北爱尔兰（222人）。在受访者的关节炎状况方面，86%（6783）报告骨关节炎，8%（664）报告类风湿关节炎，4%（313）报告银屑病关节炎，7%（594）报告痛风或钙晶体疾病。3%（272）报告了另一种关节炎，9%（695）报告有关节炎，但不知道是哪种关节炎。1525人（16%）报告患有一种以上的关节炎；其中238人患有三种或三种以上的关节炎。结论：这些数据已按年龄、性别和关节炎类型进行加权，以确保英国关节炎患者的代表性。正在对这些数据进行进一步分析，我们将按情况和人口统计描述和比较经验。我们将考虑与医疗服务互动的经验，以及关节炎对人们生活的影响的更广泛的观点。资助：本调查由Versus Arthritis资助。V.阿诺：没有。李先生：没有。霍奇森：没有。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Rheumatology 医学-风湿病学

CiteScore

9.40

自引率

7.30%

发文量

1091

审稿时长

2 months

期刊介绍： Rheumatology strives to support research and discovery by publishing the highest quality original scientific papers with a focus on basic, clinical and translational research. The journal’s subject areas cover a wide range of paediatric and adult rheumatological conditions from an international perspective. It is an official journal of the British Society for Rheumatology, published by Oxford University Press. Rheumatology publishes original articles, reviews, editorials, guidelines, concise reports, meta-analyses, original case reports, clinical vignettes, letters and matters arising from published material. The journal takes pride in serving the global rheumatology community, with a focus on high societal impact in the form of podcasts, videos and extended social media presence, and utilizing metrics such as Altmetric. Keep up to date by following the journal on Twitter @RheumJnl.