How to Ensure High-Quality Information and Communication for People With Advanced Cancer

Abstract

Rabben et al. (2025) investigated the perceptions and experiences of individuals with advanced-stage cancer and their family caregivers regarding shared decision-making in palliative care. Five key themes were identified by the researchers through qualitative interviews: (1) treatment options are intrinsically connected to critical life-and-death decisions, underscoring their importance; (2) patients and caregivers expressed varied expectations and preferences regarding their participation in decision-making; (3) uncertainty existed regarding the practicality and scope of shared decision-making, affected by emotional challenges and systemic obstacles; (4) access to high-quality information and effective communication was considered vital for meaningful engagement and (5) the role of nurses in the decision-making process was not clearly delineated. The findings highlight the critical necessity for enhanced, inclusive communication strategies within palliative care. We present various viewpoints on ensuring the provision of high-quality information and communication for individuals facing advanced cancer.

Initially, healthcare professionals must evaluate the informational requirements, cognitive abilities and preferences of each patient regarding their participation in decision-making. Tailoring discussions to these particular factors enhances engagement and helps patients and caregivers navigate complex medical information. Open, honest and compassionate conversations about prognosis, treatment options and expected outcomes are essential for building trust and facilitating informed choices. Structured and coherent conversations that involve both patients and their family caregivers promote shared understanding, reduce ambiguity and improve collaborative decision-making. Moreover, collaboration across various disciplines is crucial; engaging nurses, social workers, and palliative care specialists fosters a holistic approach and ensures that communication remains consistent within the care team. It is essential for clinicians to record patients' values, goals and care preferences, integrating these elements into treatment planning to guarantee alignment with individual priorities. This model of communication focused on the patient is essential for providing exceptional palliative care and improving the overall care experience.

Second, nurses are essential in facilitating effective information exchange and communication for patients with advanced cancer. They possess a distinctive ability to evaluate patients' understanding of medical information, elucidate intricate concepts and address both emotional and informational requirements, owing to their ongoing presence and strong therapeutic relationships with patients and families. Through consistent engagement at the bedside, nurses are able to identify potential issues early and relay them swiftly to the multidisciplinary team, thus promoting timely and coordinated care. Effective communication abilities—like active listening, empathetic engagement, and cultural awareness—are crucial for building trust and facilitating collaborative decision-making. Nurses serve as essential connections between patients and doctors, enabling the flow of vital information, translating medical terminology into understandable language and advocating for care that aligns with patients' values and objectives. Comprehensive documentation and meticulous shift handovers guarantee the continuous flow and dependability of information. The contributions outlined are essential for providing patient-centred, high-quality palliative care in intricate clinical settings.

Third, family caregivers play a crucial role in promoting effective communication and information exchange for individuals with advanced cancer. They often act as intermediaries, assisting patients in comprehending complex medical information, formulating questions and articulating personal values and care preferences. Family members significantly contribute to informed decision-making and the support of patient preferences by participating in medical consultations, documenting information, and posing inquiries. Family caregivers offer emotional support alongside practical assistance, fostering a sense of security and enhancing open communication between patients and healthcare professionals. Family caregivers should be recognised as vital components of the care team. Clinicians should engage patients in discussions, provide clear and timely information and facilitate empathetic communication. Educating caregivers regarding disease progression, treatment risks and benefits and symptom management enhances their ability to contribute effectively. Their involvement aids patients, enhances care coordination, and fosters patient-centred outcomes in palliative settings.