Improving Outreach With New Insights: How Patients and Providers See Palliative Care

IF 3.5 2区医学 Q2 CLINICAL NEUROLOGY

Journal of pain and symptom management Pub Date : 2025-04-10 DOI:10.1016/j.jpainsymman.2025.02.036

Marian Grant DNP ACNP-BC ACHPN FPCN FAAN, Anthony Back MD

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引用次数: 0

Outcomes

1. Discuss the deep metaphors patients, caregivers, and referring providers used when describing palliative care.

2. List ways to improve outreach to these groups using these metaphors.

Key Message

Palliative care continues to face barriers engaging the public and referring providers. One that the palliative care field can address now is in the language they use for outreach to these target audiences. New research findings on how patients and referring providers view palliative care could improve their interest and engagement in it and increase acceptance and referrals.

Abstract

Palliative care (PC) continues to face barriers engaging the public, our clinical colleagues, and referring providers. The empirical literature relevant to public (1) and clinician awareness demonstrate persistent inaccuracies in perceptions that block PC access. These misperceptions have not been overcome by using current communication strategies in public or collegial outreach (2). At the patient level, many who could benefit from PC do not receive it because of misconceptions that result in declining referrals. At the referring clinician level, the way that other specialists talk about PC may further discourage patients. Research demonstrates that outreach to the public and to referring clinicians should be seen as distinct challenges that require their own approach. To improve our field's ability to create persuasive outreach, we collaborated with market researchers to uncover the ‘deep metaphors’ held by patients and caregivers (3), and in a separate study, specialists who refer patients to PC. In this session we will review these rich findings that establish a novel empirical foundation for more effective outreach. The patient and referring provider participants were specifically sampled to provide a diverse range of perspectives in culture, gender, age, racial, and ethnicity. They shared images of the metaphors along with their feelings about palliative care. The session will then discuss how PC outreach can draw upon these novel findings so as to be more credible and compelling to patients, caregivers, and referring providers. We will show ‘before-and-after’ examples of successful outreach, discuss principles for effective outreach and messaging, and describe how PC clinical and administrative leaders can use this work. Attendees will leave knowing what effective PC outreach requires, how to leverage the deep metaphors held by patients and referring providers, and how their outreach to these audiences can be most effective. Opportunities for discussion and questions will be included.

References

1. Grant MS, Back AL, Dettmar NS. Public Perceptions of Advance Care Planning, Palliative Care, and Hospice: A Scoping Review. J Palliat Med. 2021 Jan;24(1):46-52. doi: 10.1089/jpm.2020.0111. Epub 2020 Jul 2. PMID: 32614634. 2.Back AL, Rotella JD, Dashti A, DeBartolo K, Rosa WE, October TW, Grant MS. Top 10 Tips Palliative Care Clinicians Should Know About Messaging for the Public. J Palliat Med. 2024 Mar;27(3):405-410. doi: 10.1089/jpm.2023.0533. Epub 2023 Sep 22. PMID: 37738320; PMCID: PMC11074435. 3. Back AL, Wax JS, Rossi RD, Shaw K, Grant MS, Zaltman L. What Patients and Caregivers Experience When They Receive Palliative Care: A Study Eliciting Metaphors That Could Shape Public Messaging. J Palliat Med. 2023 Jun;26(6):751-756. doi: 10.1089/jpm.2023.0009. Epub 2023 May 2. PMID: 37126403.

查看原文本刊更多论文

以新见解改善外展：患者和提供者如何看待姑息治疗

Outcomes1。讨论在描述姑息治疗时，患者、护理者和转诊提供者所使用的深层隐喻。列出使用这些隐喻提高与这些群体接触的方法。关键信息姑息治疗在吸引公众和转诊提供者方面仍然面临障碍。姑息治疗领域现在可以解决的一个问题是，他们在与这些目标受众接触时使用的语言。关于患者和转诊提供者如何看待姑息治疗的新研究发现可以提高他们对姑息治疗的兴趣和参与度，并增加接受度和转诊率。摘要姑息治疗（PC）仍然面临着公众、临床同事和转诊提供者参与的障碍。与公众(1)和临床医生意识相关的实证文献表明，在阻碍PC访问的认知中存在持续的不准确性。这些误解并没有通过在公共或大学外展中使用当前的沟通策略来克服(2)。在患者层面，许多可以从PC中受益的人没有接受它，因为误解导致转诊减少。在转诊医生的水平上，其他专家谈论PC的方式可能会进一步劝阻患者。研究表明，向公众和转诊临床医生的推广应被视为不同的挑战，需要他们自己的方法。为了提高我们的领域创造有说服力的外展能力，我们与市场研究人员合作，揭示了患者和护理人员所持有的“深层隐喻”(3)，并在另一项研究中，将患者推荐给PC的专家。在本次会议上，我们将回顾这些丰富的发现，为更有效的外展建立新的经验基础。患者和转诊提供者参与者被特别取样，以提供文化、性别、年龄、种族和民族方面的不同视角。他们分享了隐喻的图像以及他们对姑息治疗的感受。然后，会议将讨论如何利用这些新发现，使PC外展对患者、护理人员和转诊提供者更可信、更有吸引力。我们将展示成功外展的“前后对比”例子，讨论有效外展和信息传递的原则，并描述PC临床和行政领导如何使用这项工作。与会者将在离开时了解有效的PC外展需要什么，如何利用患者和转诊提供者所持有的深层隐喻，以及他们如何最有效地向这些受众外展。包括讨论和提问的机会。参考文献1。Grant MS, Back AL, Dettmar NS。公众对预先照护计划、缓和照护与安宁疗护的认知：范围回顾。[J]中华检验医学杂志，2016;24(1):46-52。doi: 10.1089 / jpm.2020.0111。Epub 2020 7月2日。PMID: 32614634。2.Back AL, Rotella JD, Dashti A, DeBartolo K, Rosa WE, October TW, Grant MS.姑息治疗临床医生应该知道的关于向公众传递信息的10大提示。[J]中华检验医学杂志；2009;27(3):405-410。doi: 10.1089 / jpm.2023.0533。Epub 2023 Sep 22。PMID: 37738320;PMCID: PMC11074435。3. 李建军，李建军，李建军，李建军，李建军，李建军，李建军，李建军。姑息治疗对患者和护理人员的影响：一项研究。[J]中华检验医学杂志，2009;26(6):751-756。doi: 10.1089 / jpm.2023.0009。2023年5月2日。PMID: 37126403。

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来源期刊

Journal of pain and symptom management 医学-临床神经学

CiteScore

8.90

自引率

6.40%

发文量

821

审稿时长

26 days

期刊介绍： The Journal of Pain and Symptom Management is an internationally respected, peer-reviewed journal and serves an interdisciplinary audience of professionals by providing a forum for the publication of the latest clinical research and best practices related to the relief of illness burden among patients afflicted with serious or life-threatening illness.