Trudy Schutter, Ian Koper, Kris Vissers, Jeroen Hasselaar
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引用次数: 0
Abstract
Background: Collaboration between the healthcare domain and welfare domain could benefit people confronted with an incurable disease residing at home and their informal caregivers, but little is known about this collaboration regarding palliative care. There are regional palliative care networks in the Netherlands, supporting interdisciplinary integrated palliative care; each network has a network coordinator who is a primary liaison for the network and who has an overview of palliative care services and activities in the region. However, the view of the networks on the role of the welfare domain and collaboration with the welfare domain in the field of palliative care is unknown.
Objective: The aim of this study is to explore the awareness of professionals for the social dimension of palliative care and to explore how collaboration between the healthcare domain and the Dutch municipal welfare domain, in the field of palliative care, can be improved.
Design: Focus group research.
Methods: In 2022, six focus groups and two individual interviews were held with 30 coordinators of regional palliative care networks in the Netherlands.
Results: This study showed that coordinators of regional palliative care networks consider collaboration with the welfare domain to be important. There are major differences between the regional palliative care networks regarding knowledge about and collaboration with the welfare domain. Coordinators themselves can function as catalysts for collaboration between palliative care and the welfare domain.
Conclusion: In the Netherlands, collaboration between the welfare domain and the healthcare domain in the field of palliative care is limited and differs considerably between regions. The Dutch municipal welfare domain is relevant for a large group of people confronted with an incurable disease, but it does not provide them with tailored services. Collaboration between palliative care and the municipal welfare domain has great potential, both on the patient level and on the level of the sustainability of palliative care, but it currently seems underexplored.
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