Community-Engaged Research in HIV Implementation Science: Characterizing Academic and Community Partnerships in the "Ending the HIV Epidemic" Supplement Awards.
Reva Datar, Sheree Schwartz, Wilson Gomez, David A Katz, Gustavo Morales, Debbie Humphries, April Pettit, Audrey Harkness, Pedro Alonso Serrano, Robin Gaines Lanzi, Jessica M Sales, Christopher Archiopoli, Stefan Baral, Laura K Beres
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引用次数: 0
Abstract
Background: Meaningful community engagement in research is critical yet challenging in traditional academic models. To inform engagement efforts, we characterized community-academic partnerships funded through the Ending the HIV Epidemic (EHE) Initiative.
Methods: From July to December 2023, community and academic partner recipients of 2021 or 2022 EHE implementation science awards were invited to independently complete an online survey assessing partnership experience, anticipated and experienced levels of community engagement, and community engagement throughout the research process. Level of community engagement measures was guided by the Continuum of Community Engagement model. Data were descriptively analyzed.
Findings: Of 102 invited projects, we received 82 responses, 29 community (35%) and 53 academic (65%) awardees, representing 54 projects (53%). We received responses from community and academic representatives of the same project (ie, paired responses) for 22 of 54 (41%) participating projects. One-third (27/82) of participants reported collaborating with their EHE partner for ≤2 years. Overall, 41 of 53 (77%) academic representatives anticipated higher engagement than they experienced. Conversely, 20 of 28 (71%) community partners anticipated lower levels of community engagement than they experienced. Community and academic partners reported active engagement of community partners during recruitment (71/81, 88%) and data collection (54/81, 67%) activities most frequently. They reported active engagement of community partners during data analysis (18/81, 22%) and grant writing (22/81, 27%) activities least frequently.
Conclusions: EHE implementation science awards largely resulted in active collaborations with varied experiential perspectives from both academic and community partners. Strategies for improved shared understanding of how partners envision their engagement throughout the research may strengthen collaborations.
期刊介绍:
JAIDS: Journal of Acquired Immune Deficiency Syndromes seeks to end the HIV epidemic by presenting important new science across all disciplines that advance our understanding of the biology, treatment and prevention of HIV infection worldwide.
JAIDS: Journal of Acquired Immune Deficiency Syndromes is the trusted, interdisciplinary resource for HIV- and AIDS-related information with a strong focus on basic and translational science, clinical science, and epidemiology and prevention. Co-edited by the foremost leaders in clinical virology, molecular biology, and epidemiology, JAIDS publishes vital information on the advances in diagnosis and treatment of HIV infections, as well as the latest research in the development of therapeutics and vaccine approaches. This ground-breaking journal brings together rigorously peer-reviewed articles, reviews of current research, results of clinical trials, and epidemiologic reports from around the world.