Community-Engaged Research in HIV Implementation Science: Characterizing Academic and Community Partnerships in the "Ending the HIV Epidemic" Supplement Awards.

IF 2.9 3区 医学 Q3 IMMUNOLOGY
Reva Datar, Sheree Schwartz, Wilson Gomez, David A Katz, Gustavo Morales, Debbie Humphries, April Pettit, Audrey Harkness, Pedro Alonso Serrano, Robin Gaines Lanzi, Jessica M Sales, Christopher Archiopoli, Stefan Baral, Laura K Beres
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引用次数: 0

Abstract

Background: Meaningful community engagement in research is critical yet challenging in traditional academic models. To inform engagement efforts, we characterized community-academic partnerships funded through the Ending the HIV Epidemic (EHE) Initiative.

Methods: From July to December 2023, community and academic partner recipients of 2021 or 2022 EHE implementation science awards were invited to independently complete an online survey assessing partnership experience, anticipated and experienced levels of community engagement, and community engagement throughout the research process. Level of community engagement measures was guided by the Continuum of Community Engagement model. Data were descriptively analyzed.

Findings: Of 102 invited projects, we received 82 responses, 29 community (35%) and 53 academic (65%) awardees, representing 54 projects (53%). We received responses from community and academic representatives of the same project (ie, paired responses) for 22 of 54 (41%) participating projects. One-third (27/82) of participants reported collaborating with their EHE partner for ≤2 years. Overall, 41 of 53 (77%) academic representatives anticipated higher engagement than they experienced. Conversely, 20 of 28 (71%) community partners anticipated lower levels of community engagement than they experienced. Community and academic partners reported active engagement of community partners during recruitment (71/81, 88%) and data collection (54/81, 67%) activities most frequently. They reported active engagement of community partners during data analysis (18/81, 22%) and grant writing (22/81, 27%) activities least frequently.

Conclusions: EHE implementation science awards largely resulted in active collaborations with varied experiential perspectives from both academic and community partners. Strategies for improved shared understanding of how partners envision their engagement throughout the research may strengthen collaborations.

社区参与的艾滋病毒执行科学研究:“结束艾滋病毒流行”补充奖中的学术和社区伙伴关系特征。
背景:在传统的学术模式中,有意义的社区参与是至关重要的,但也是具有挑战性的。为了为参与工作提供信息,我们介绍了由终止艾滋病毒流行倡议资助的社区-学术伙伴关系。方法:从2023年7月至12月,邀请2021年或2022年EHE实施科学奖的社区和学术合作伙伴获得者独立完成一项在线调查,评估合作伙伴体验、预期和经历的社区参与水平以及整个研究过程中的社区参与程度。社区参与水平措施以社区参与连续模式为指导。对数据进行描述性分析。结果:在102个受邀项目中,我们收到了82份回复,其中29个社区(35%)和53个学术(65%)获奖,代表54个项目(53%)。我们收到了来自同一项目的社区和学术代表的回复(即配对回复),涉及54个参与项目中的22个(41%)。三分之一(27/82)的参与者报告与他们的EHE合作伙伴合作不超过2年。总体而言,53位学术代表中有41位(77%)预期会有更高的参与度。相反,28个社区合作伙伴中有20个(71%)预期社区参与水平低于实际情况。社区和学术合作伙伴报告说,社区合作伙伴在最频繁的招聘(71/ 81,88%)和数据收集(54/ 81,67%)活动中积极参与。他们报告说,在数据分析(18/ 81,22%)和拨款撰写(22/ 81,27%)活动中,社区合作伙伴的积极参与频率最低。结论:EHE实施科学奖在很大程度上促成了来自学术界和社区合作伙伴的各种经验观点的积极合作。提高对合作伙伴在整个研究过程中如何设想其参与的共同理解的战略可以加强合作。
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来源期刊
CiteScore
5.80
自引率
5.60%
发文量
490
审稿时长
3-6 weeks
期刊介绍: JAIDS: Journal of Acquired Immune Deficiency Syndromes​ seeks to end the HIV epidemic by presenting important new science across all disciplines that advance our understanding of the biology, treatment and prevention of HIV infection worldwide. JAIDS: Journal of Acquired Immune Deficiency Syndromes is the trusted, interdisciplinary resource for HIV- and AIDS-related information with a strong focus on basic and translational science, clinical science, and epidemiology and prevention. Co-edited by the foremost leaders in clinical virology, molecular biology, and epidemiology, JAIDS publishes vital information on the advances in diagnosis and treatment of HIV infections, as well as the latest research in the development of therapeutics and vaccine approaches. This ground-breaking journal brings together rigorously peer-reviewed articles, reviews of current research, results of clinical trials, and epidemiologic reports from around the world.
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