281st ENMC international workshop: 2nd ENMC workshop on exercise training in muscle diseases; towards consensus-based recommendations on exercise prescription and outcome measures. Hoofddorp, The Netherlands, 4-6 October 2024
Eric Lukas Voorn , Alejandro Lucia , John Vissing , 281st ENMC workshop study group
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引用次数: 0
Abstract
The 281st ENMC workshop on exercise in muscle diseases was held on October 4–6, 2024. The workshop study group included people with lived experience, healthcare professionals and researchers from different disciplines. To facilitate improved application of exercise in daily practice, this workshop aimed to reach a consensus on recommendations for exercise prescription and outcome measures. There were sessions on 1) scientific evidence on exercise prescription and current practice (based on international online surveys of people with muscle diseases and healthcare professionals), 2) outcome measures, and 3) long-term continuation of exercise. Based on the scientific evidence, survey results and group discussions during the workshop sessions, a strong consensus (all attendees agreed) was reached that personalized exercise is safe and beneficial for people with muscle diseases and is recommended. Recommendations were formulated for the frequency, intensity, time, and type of aerobic and resistance exercise, as well as potential outcome measures for future studies.
期刊介绍:
This international, multidisciplinary journal covers all aspects of neuromuscular disorders in childhood and adult life (including the muscular dystrophies, spinal muscular atrophies, hereditary neuropathies, congenital myopathies, myasthenias, myotonic syndromes, metabolic myopathies and inflammatory myopathies).
The Editors welcome original articles from all areas of the field:
• Clinical aspects, such as new clinical entities, case studies of interest, treatment, management and rehabilitation (including biomechanics, orthotic design and surgery).
• Basic scientific studies of relevance to the clinical syndromes, including advances in the fields of molecular biology and genetics.
• Studies of animal models relevant to the human diseases.
The journal is aimed at a wide range of clinicians, pathologists, associated paramedical professionals and clinical and basic scientists with an interest in the study of neuromuscular disorders.