Molly R. Altman , Kathrin Stoll , Teresa van Winkle , Brittany Ferrell , Kodiak R.S. Soled , Nicholas Rubashkin , Indra Lusero , Meghan Eagen-Torkko , Juno Obedin-Maliver , Saraswathi Vedam , Birth Includes Us Community Steering Council
{"title":"Reliability and validity of measures of respectful care and discrimination for LGBTQ2S+ pregnant people","authors":"Molly R. Altman , Kathrin Stoll , Teresa van Winkle , Brittany Ferrell , Kodiak R.S. Soled , Nicholas Rubashkin , Indra Lusero , Meghan Eagen-Torkko , Juno Obedin-Maliver , Saraswathi Vedam , Birth Includes Us Community Steering Council","doi":"10.1016/j.midw.2025.104391","DOIUrl":null,"url":null,"abstract":"<div><h3>Problem</h3><div>There are no measures of respectful perinatal care validated within Lesbian, Gay, Bisexual, Transgender, Queer, Two-Spirit, and other sexual/gender minoritized (LGBTQ2S+) communities.</div></div><div><h3>Background</h3><div>The LGBTQ2S+ community frequently experiences disrespect and discrimination in health care settings. While several instruments and scales have been developed to measure respectful perinatal (maternity) care, none have yet been adapted nor validated within the LGBTQ2S+ community.</div></div><div><h3>Aims</h3><div>The aim of this study is to validate three scales measuring aspects of respectful perinatal care for use within LGBTQ2S+ pregnancy care experience research.</div></div><div><h3>Methods</h3><div>This analysis of data from the ‘Birth Includes Us’ pilot study was collected via a community-developed survey assessing pregnancy care experiences of LGBTQ2S+ families. We assessed the psychometric properties of three adapted instruments, the Intersectional Day-to-Day Discrimination Index (InDI-D), the Measure of Autonomy and Decision Making (MADM), and the Measure of Respect index (MORi).</div></div><div><h3>Findings</h3><div>All adapted scales performed well, with Cronbach's alphas greater than 0.8 across all measures. Scale scores for the preconception and pregnancy care versions of the MADM and MORi were 0.38 and 0.37 respectively, indicating that these care experiences were significantly different from one another.</div></div><div><h3>Discussion</h3><div>The adapted versions of the InDI-D, MADM, and MORi performed well among LGBTQ2S+ families in their preconception and pregnancy care experiences and will be essential for future studies examining respectful perinatal care among these communities.</div></div><div><h3>Conclusion</h3><div>We recommend utilization of these validated measures to assess and address inequities in pregnancy-related care experiences for LGBTQ2S+ individuals and families.</div></div>","PeriodicalId":18495,"journal":{"name":"Midwifery","volume":"145 ","pages":"Article 104391"},"PeriodicalIF":2.6000,"publicationDate":"2025-03-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Midwifery","FirstCategoryId":"3","ListUrlMain":"https://www.sciencedirect.com/science/article/pii/S0266613825001093","RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q1","JCRName":"NURSING","Score":null,"Total":0}
引用次数: 0
Abstract
Problem
There are no measures of respectful perinatal care validated within Lesbian, Gay, Bisexual, Transgender, Queer, Two-Spirit, and other sexual/gender minoritized (LGBTQ2S+) communities.
Background
The LGBTQ2S+ community frequently experiences disrespect and discrimination in health care settings. While several instruments and scales have been developed to measure respectful perinatal (maternity) care, none have yet been adapted nor validated within the LGBTQ2S+ community.
Aims
The aim of this study is to validate three scales measuring aspects of respectful perinatal care for use within LGBTQ2S+ pregnancy care experience research.
Methods
This analysis of data from the ‘Birth Includes Us’ pilot study was collected via a community-developed survey assessing pregnancy care experiences of LGBTQ2S+ families. We assessed the psychometric properties of three adapted instruments, the Intersectional Day-to-Day Discrimination Index (InDI-D), the Measure of Autonomy and Decision Making (MADM), and the Measure of Respect index (MORi).
Findings
All adapted scales performed well, with Cronbach's alphas greater than 0.8 across all measures. Scale scores for the preconception and pregnancy care versions of the MADM and MORi were 0.38 and 0.37 respectively, indicating that these care experiences were significantly different from one another.
Discussion
The adapted versions of the InDI-D, MADM, and MORi performed well among LGBTQ2S+ families in their preconception and pregnancy care experiences and will be essential for future studies examining respectful perinatal care among these communities.
Conclusion
We recommend utilization of these validated measures to assess and address inequities in pregnancy-related care experiences for LGBTQ2S+ individuals and families.