Unmet needs, burden, and quality of life among family caregivers of patients with advanced hematological malignancy.

IF 2.3 3区医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH

Psychology Health & Medicine Pub Date : 2025-03-25 DOI:10.1080/13548506.2025.2482954

Mohammad Minwer Alnaeem, Mohammad Al Qadire, Abdulqadir J Nashwan

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Abstract

This study investigates caregiver burden, unmet needs, and quality of life (QoL) in family caregivers (FCs) of patients with advanced hematology malignancies (HMs). A descriptive cross-sectional survey was conducted at a governmental hospital (Between April - July 2021), involving 197 FCs. The survey used three validated tools: Needs Assessment of Family Caregivers-Cancer, Short form Zarit Burden Interview, and Caregiver Quality of Life Index-Cancer. The findings revealed that psychological needs (average score 29.6) and daily activity needs (average score 26.5) were the most unmet. The majority of caregivers reported experiencing a high burden (51.3%) and poor QoL, with an average score of 72.1. Those with higher daily activity unmet needs (β = 0.214, p < 0.001) and higher financial unmet needs (β = 0.696, p = 0.044) were associated with poor QoL. Also, patients with higher psychological unmet needs (β = .414, p < .001) and higher burden scores (β = 0.542, p < 0.001) had poor QoL. These results highlight an urgent requirement for measures addressing the unmet needs of FCs of patients with HMs in Jordan. The study underscores the importance of healthcare professionals recognizing and supporting the mental, psychological, and social needs of FCs.

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晚期血液恶性肿瘤患者家庭照顾者未满足的需求、负担和生活质量

本研究探讨晚期血液学恶性肿瘤（HMs）患者家庭照顾者（fc）的照顾者负担、未满足的需求和生活质量（QoL）。在一家政府医院（2021年4月至7月）进行了一项描述性横断面调查，涉及197名fc。该调查使用了三种有效的工具：家庭照顾者需求评估-癌症，简短的Zarit负担访谈和照顾者生活质量指数-癌症。调查结果显示，心理需求（平均得分29.6分）和日常活动需求（平均得分26.5分）是最未被满足的。大多数护理人员报告负担高（51.3%），生活质量差，平均得分为72.1。每日活动量较高但未满足需求的患者（β = 0.214, p = 0.044）生活质量较差。心理未满足需求较高的患者(β = .414, p

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来源期刊

Psychology Health & Medicine PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH-

CiteScore

6.20

自引率

0.00%

发文量

200

审稿时长

6-12 weeks

期刊介绍： Psychology, Health & Medicine is a multidisciplinary journal highlighting human factors in health. The journal provides a peer reviewed forum to report on issues of psychology and health in practice. This key publication reaches an international audience, highlighting the variation and similarities within different settings and exploring multiple health and illness issues from theoretical, practical and management perspectives. It provides a critical forum to examine the wide range of applied health and illness issues and how they incorporate psychological knowledge, understanding, theory and intervention. The journal reflects the growing recognition of psychosocial issues as they affect health planning, medical care, disease reaction, intervention, quality of life, adjustment adaptation and management. For many years theoretical research was very distant from applied understanding. The emerging movement in health psychology, changes in medical care provision and training, and consumer awareness of health issues all contribute to a growing need for applied research. This journal focuses on practical applications of theory, research and experience and provides a bridge between academic knowledge, illness experience, wellbeing and health care practice.