Overcoming Research Mistrust in African American Communities by Engaging Community Members as Research Team Members: Challenges and Opportunities.

IF 2.6 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH

Health Equity Pub Date : 2024-09-12 eCollection Date: 2024-01-01 DOI:10.1089/heq.2024.0050

Melissa Ryan, Travaé Hardaway Griffith, Grace Okoro, Tiffany Osborne, Lori Brand Bateman, Janet M Turan, Raegan W Durant, Lece Webb, Mona N Fouad, Gabriela R Oates

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Abstract

Objectives: We aimed to understand factors surrounding COVID-19 testing in vulnerable urban and rural African American communities in Alabama, which are characterized by mistrust in medical research.

Methods: To address widespread mistrust, we trained lay community members as research coordinators (Community Engagement Coordinators-CECs) and employed them for study recruitment and data collection. We then explored their experiences through group discussions and individual interviews.

Results: Ten CECs (8 in Jefferson, 2 in Dallas County; 8 female, 2 male) completed 5 h of instructor-led training followed by virtual Collaborative Institutional Training Initiative (CITI) Human Subjects Training. In 11 weeks, CECs recruited 318 study participants and administered 303 surveys. After survey data collection was completed, CECs recruited survey respondents for participation in focus groups, enrolling 53 individuals. CECs continued their study engagement by reviewing developed study products.

Conclusions: Engaging CECs as research personnel facilitated successful completion of planned enrollment with minimal missing data. Investing in communities by training and employing community members as study personnel can help overcome research mistrust and promote support for research and public health interventions.

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通过让社区成员成为研究团队成员来克服非裔美国人社区的研究不信任：挑战和机遇。

目的：我们旨在了解在阿拉巴马州脆弱的城市和农村非洲裔美国人社区进行COVID-19检测的相关因素，这些社区的特点是对医学研究的不信任。方法：为了解决普遍存在的不信任，我们培训了非专业社区成员作为研究协调员（社区参与协调员- cecs），并雇用他们进行研究招募和数据收集。然后我们通过小组讨论和个人访谈来探讨他们的经历。结果：10例CECs(杰弗逊县8例，达拉斯县2例；8名女性，2名男性)完成了5小时的讲师指导培训，随后是虚拟协作机构培训计划（CITI）人类受试者培训。在11周内，CECs招募了318名研究参与者，并进行了303项调查。调查数据收集完成后，CECs招募调查对象参与焦点小组，共招募53人。cec通过审查已开发的研究产品继续他们的研究参与。结论：让CECs作为研究人员有助于以最小的缺失数据成功完成计划的入组。通过培训和雇用社区成员作为研究人员对社区进行投资，有助于克服对研究的不信任，促进对研究和公共卫生干预措施的支持。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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