Sylvie Belleville, Nicole D Anderson, Louis Bherer, Richard Camicioli, Julie Carrier, Senny Chan, Marc Cuesta, Thien Thanh Dang-Vu, Emily Dwosh, Alexandra J Fiocco, Guylaine Ferland, Brigitte Gilbert, Elaine Harris, Inbal Itzhak, Pamela Jarrett, Mohamed Abdelhafid Kadri, Danielle Laurin, Teresa Liu-Ambrose, Chris A McGibbon, Laura Middleton, Lesley Miller, Haakon B Nygaard, Manuel Montero-Odasso, Kelly Murphy, Natalie Phillips, M Kathleen Pichora-Fuller, Julie M Robillard, Eric E Smith, Mark Speechley, Amal Trigui, Walter Wittich, Howard Chertkow, Howard H Feldman
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引用次数: 0
Abstract
Background: Online educational programs focused on ways to improve brain health could increase participant literacy, empowerment, and engagement in activities that support personal brain health, potentially reducing dementia risk.
Objectives: Our goal was to develop an evidence-based online educational program with a focus on risk and protective factors for dementia. Here we present the rationale and features of the program and include results from a pilot study that assessed usability and acceptability.
Design: This project is part of the Can-Thumbs UP (CTU) initiative. An Intervention Mapping Approach framework and co-construction approach was used to develop the online program. A pre-post pilot open label design was used to test the usability and acceptance of this at-home educational program.
Setting: The program and assessment for the pilot study were delivered fully remotely.
Participants: Twenty community-dwelling older adults (60-83 years of age, 65 % female) living in Canada who were at increased risk of dementia.
Program: The Brain Health PRO/Santé Cerveau PRO is a web-based 45-week program available in French and English. It provides general information and guidance on seven modifiable risk factors for dementia: physical activity, nutrition, cognitively stimulating activities, sleep, social and psychological health, vascular health, and vision/hearing. After completing a brief intake questionnaire, users are provided with an individualized risk profile to personalize priorities and goals. During the course of the program, users receive feedback on lifestyle changes. For this pilot study, participants completed a 15-week version of the program.
Measurements: This pilot study reports measures of usability (System Usability Scale), acceptance (Technology Acceptance Model-2) as well as risk profiles at intake based on self-reported questionnaires.
Results: Two logic models were developed to identify the determinants of risk for dementia and how these could be targeted by the program. A review of dementia risk and protective factors and online educational programs for older adults, as well as co-creation activities with experts, stakeholders, and citizen advisors, were used to identify the determinants, target, format, and content of the program. The pilot study reports excellent usability and acceptance with scores of 80.4/100 and 93.5/120 respectively.
Conclusion: Intervention mapping and co-construction approaches facilitated the design of a program that effectively balances the delivery of scientific content with the specific constraints, needs and abilities of older adults.
背景：专注于改善大脑健康方法的在线教育项目可以提高参与者的读写能力、赋权和参与支持个人大脑健康的活动，从而潜在地降低痴呆症的风险。目的：我们的目标是开发一个以证据为基础的在线教育项目，重点关注痴呆症的风险和保护因素。在这里，我们提出了该计划的基本原理和特点，并包括了评估可用性和可接受性的试点研究的结果。设计：该项目是Can-Thumbs UP （CTU）计划的一部分。采用干预映射方法框架和协同构建方法来开发在线程序。一个前后试点开放标签设计被用来测试可用性和接受这个家庭教育计划。设置：试点研究的程序和评估完全远程交付。参与者：20名居住在加拿大社区的老年人（60-83岁，65%为女性），他们患痴呆症的风险增加。课程：脑健康PRO/ sant Cerveau PRO是一个基于网络的为期45周的课程，有法语和英语版本。它提供了关于七个可改变的痴呆症风险因素的一般信息和指导：身体活动、营养、认知刺激活动、睡眠、社会和心理健康、血管健康和视力/听力。在完成一份简短的摄入问卷后，用户将获得一份个性化的风险概况，以个性化优先级和目标。在项目过程中，用户会收到生活方式改变的反馈。在这个试点研究中，参与者完成了一个为期15周的项目。测量：这个试点研究报告了可用性（系统可用性量表）、接受度（技术接受模型-2）以及基于自我报告的问卷调查的风险概况。结果：开发了两个逻辑模型来确定痴呆症风险的决定因素，以及如何将这些因素作为该计划的目标。通过对痴呆症风险和保护因素、老年人在线教育项目以及与专家、利益相关者和公民顾问的共同创造活动的回顾，确定了项目的决定因素、目标、形式和内容。试点研究的可用性和可接受性表现优异，得分分别为80.4/100和93.5/120。结论：干预测绘和共同构建方法促进了项目的设计，有效地平衡了科学内容的传递与老年人的具体限制、需求和能力。试验注册：NCT05347966。
期刊介绍：
The JPAD Journal of Prevention of Alzheimer’Disease will publish reviews, original research articles and short reports to improve our knowledge in the field of Alzheimer prevention including: neurosciences, biomarkers, imaging, epidemiology, public health, physical cognitive exercise, nutrition, risk and protective factors, drug development, trials design, and heath economic outcomes.JPAD will publish also the meeting abstracts from Clinical Trial on Alzheimer Disease (CTAD) and will be distributed both in paper and online version worldwide.We hope that JPAD with your contribution will play a role in the development of Alzheimer prevention.
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