TDAH en France : la place des associations de patients et familles

IF 0.5 4区医学 Q4 PSYCHIATRY

Annales medico-psychologiques Pub Date : 2025-03-01 DOI:10.1016/j.amp.2024.08.028

Christine Gétin, Claudine Casavecchia

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引用次数: 0

Abstract

The patient association HyperSupers TDAH France, founded in 2002 and recognized as a public utility, plays a crucial role in supporting individuals with ADHD and their families. It provides personalized support, responding to over 11,000 requests in 2023, and educates the public through its vastly visited website. HyperSupers TDAH France also holds significant advocacy power. It has contributed to the development of the recommendations by the Haute Autorité de Santé – HAS – (French National Authority for Health) and actively participates in various health institutions to influence health policies. The association works in research, education, employment, and law to ensure recognition of ADHD and support for affected individuals. Collaborating with healthcare professionals and researchers, HyperSupers fosters a better understanding of ADHD and its management. It is actively involved in the national strategy on neurodevelopmental disorders (NDD). The association's main requests include establishing an ADHD research cohort, improving professional training, ensuring early diagnosis and interventions, and taking actions to enhance the academic and professional lives of individuals with ADHD. HyperSupers also advocates for changes in university curricula and for better consideration of the specific needs of individuals with ADHD in public policies.

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多动症在法国的地位：患者和家庭协会

法国hypersuperers TDAH患者协会成立于2002年，是公认的公共机构，在支持ADHD患者及其家庭方面发挥着至关重要的作用。它提供个性化支持，在2023年响应了超过11,000个请求，并通过其访问量巨大的网站对公众进行教育。HyperSupers TDAH法国也拥有重要的宣传力量。它为制定法国国家卫生管理局的建议作出了贡献，并积极参与各种卫生机构，以影响卫生政策。该协会在研究、教育、就业和法律方面开展工作，以确保对多动症的认识，并为受影响的个人提供支持。与医疗保健专业人员和研究人员合作，HyperSupers促进了对ADHD及其管理的更好理解。它积极参与国家神经发育障碍战略。该协会的主要要求包括建立一个多动症研究队列，改进专业培训，确保早期诊断和干预，并采取行动提高多动症患者的学术和职业生活。hypersuperers还倡导改变大学课程，并在公共政策中更好地考虑多动症患者的特殊需求。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Annales medico-psychologiques 医学-精神病学

CiteScore

1.30

自引率

33.30%

发文量

196

审稿时长

4-8 weeks

期刊介绍： The Annales Médico-Psychologiques is a peer-reviewed medical journal covering the field of psychiatry. Articles are published in French or in English. The journal was established in 1843 and is published by Elsevier on behalf of the Société Médico-Psychologique. The journal publishes 10 times a year original articles covering biological, genetic, psychological, forensic and cultural issues relevant to the diagnosis and treatment of mental illness, as well as peer reviewed articles that have been presented and discussed during meetings of the Société Médico-Psychologique.To report on the major currents of thought of contemporary psychiatry, and to publish clinical and biological research of international standard, these are the aims of the Annales Médico-Psychologiques.