["I want to remain active": Women suffering from fibromyalgia strategies to conduct basic, instrumental, and advanced daily activities].

Daniel Sanjuan-Sánchez, Carolina Climent-Sanz, María Del Mar Patiño-Vera, Montserrat Gea-Sánchez, Francesc Rubí-Carnacea, Erica Briones Vozmediano
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Abstract

Correspondencia · Corresponding Author Carolina Climent Sanz E-mail: carol.climent@udl.cat Abstract Purpose: Fibromyalgia symptoms can significantly limit a person's ability to function and participate in daily activities, such as work. Exploring patients' perceptions of the impact of fibromyalgia symptoms on functionality can provide valuable insight into their coping strategies and needs to remain active. This study aims to describe the strategies and adaptations women with fibromyalgia use to carry out basic, instrumental, and advanced activities of daily living. Methods: Qualitative study based on personal interviews with 25 women diagnosed with fibromyalgia. A thematic analysis was conducted following the classification of activities of daily living into basic (movement and moving around, personal hygiene and getting dressed), instrumental (cleaning, housekeeping, and shopping), and advanced (work).  Results: Due to the functional impact of symptoms in all activities of daily living, women with fibromyalgia introduced different compensatory strategies, support products, and modifications in the environment or task to increase their level of occupational competence. Introducing adaptations in the public space is a challenge, and work is a source of distress, either because it has disappeared or because of the effort to carry it out satisfactorily. Conclusion: Healthcare professionals caring for women with fibromyalgia should recognize the impact of fibromyalgia on patients' functionality and employ strategies to improve their adaptation, as well as facilitate the assessment of sick leave.

[“我想保持活跃”:患有纤维肌痛的女性进行基本、辅助和高级日常活动的策略]。
摘要目的:纤维肌痛症状会严重限制一个人的功能和参与日常活动(如工作)的能力。探索患者对纤维肌痛症状对功能影响的认知可以为他们的应对策略和保持活跃的需求提供有价值的见解。本研究旨在描述患有纤维肌痛的女性在进行基本、辅助和高级日常生活活动时的策略和适应。方法:对25名确诊为纤维肌痛的女性进行访谈定性研究。将日常生活活动分为基本活动(运动和走动、个人卫生和穿衣)、工具活动(清洁、家务和购物)和高级活动(工作),并进行了主题分析。结果:由于纤维肌痛症状对所有日常生活活动的功能影响,患有纤维肌痛的女性采用不同的代偿策略、支持产品和改变环境或任务来提高她们的职业能力水平。在公共空间引入适应性是一项挑战,工作是痛苦的来源,要么因为它已经消失,要么因为努力令人满意地执行它。结论:医疗保健专业人员应认识到纤维肌痛对患者功能的影响,并采取措施提高患者的适应能力,并促进病假评估。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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