'I couldn't live without hope': A qualitative study using reflexive thematic analysis on approaches to hope and prognostic awareness among people with advanced disease.

IF 3.6 2区医学 Q1 HEALTH CARE SCIENCES & SERVICES

Palliative Medicine Pub Date : 2025-04-01 Epub Date: 2025-03-12 DOI:10.1177/02692163251323558

Miroslava Janoušková, Adam Houska, Sára Víchová, Martin Loučka

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引用次数: 0

Abstract

Background: Hope plays a pivotal role in enhancing the quality of life and coping strategies of individuals living with advanced diseases. The nature of the relationship between hope and prognostic awareness is unclear.

Aim: To explore the experiences and meanings of hope and their association with prognostic awareness among people with advanced incurable diseases.

Design: Qualitative phenomenological study using reflexive thematic analysis of semi-structured interviews.

Setting/participants: Interviews with 24 participants aged 30-99 years with advanced incurable disease were conducted in hospices and hospitals in the Czech Republic.

Results: We generated four distinct approaches to hope and prognostic awareness: Technical, Spiritual, Minimalist and Pragmatic. Each approach exhibited unique cognitive, emotional and behavioural dimensions of hope and prognostic awareness. The Technical and Minimalist approaches showed fluctuating hope influenced by medical updates, while the Spiritual and Pragmatic approaches demonstrated stable hope resilient to prognostic information.

Conclusions: Recognizing these diverse hope approaches can guide tailored interventions in palliative care. Healthcare providers should adapt their communication strategies based on people's predominant hope orientations to support effective coping and enhance end-of-life care outcomes. This study sheds light on how different individuals navigate hope amidst terminal illnesses, providing insights into the nuanced psychological and emotional dynamics that influence their coping mechanisms.

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来源期刊

Palliative Medicine 医学-公共卫生、环境卫生与职业卫生

CiteScore

7.60

自引率

9.10%

发文量

125

审稿时长

6-12 weeks

期刊介绍： Palliative Medicine is a highly ranked, peer reviewed scholarly journal dedicated to improving knowledge and clinical practice in the palliative care of patients with far advanced disease. This outstanding journal features editorials, original papers, review articles, case reports, correspondence and book reviews. Essential reading for all members of the palliative care team. This journal is a member of the Committee on Publication Ethics (COPE).