Measuring family engagement in intensive care: Validation of the FAME tool

IF 3.2 3区医学 Q2 CRITICAL CARE MEDICINE

Journal of critical care Pub Date : 2025-03-03 DOI:10.1016/j.jcrc.2025.155046

Jillian Kifell , Karen E.A. Burns , Julia Duong , Kirsten Fiest , Catherine Gagné , Céline Gélinas , Karla Krewulak , Chella Price , Amelia Stephenson , Han Ting Wang , Michael Goldfarb

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引用次数: 0

Abstract

Introduction

Engaging family members in patient care in the intensive care unit (ICU) is a recommended practice by critical care societies. However, there are currently no validated tools to measure family engagement in the ICU setting. The objective of this study was to validate the FAMily Engagement (FAME) tool in the ICU.

Methods

The FAME study was a multicenter prospective cohort study of family members of ICU patients in 8 Canadian ICUs. Family members completed the FAME questionnaire during the ICU stay. The FAME questionnaire comprised 12 items that assessed various domains of family engagement behavior. FAME scores were reported in a 0–100 scoring system with higher scores indicating increased care engagement. Following hospital discharge, we assessed associations between the FAME score and family satisfaction with care and mental health (anxiety and depression). The internal consistency (reliability), convergent validity, and predictive validity of the FAME tool were evaluated.

Results

There were 269 family members (age 56.8 ± 15.1; 68.4 % women) included in the analysis. The most common relationships to the patient were spouse/partner (40.5 %) and daughter/son (33.8 %). The overall mean FAME score was 77.7 ± 14.8. The FAME score had high internal consistency (Cronbach's α = 0.83) and the tool demonstrated convergent and predictive validity. The FAME score was associated with family satisfaction, but not with mental health outcomes.

Conclusion

The FAME tool demonstrated reliability, convergent, and predictive validity in this multicenter ICU cohort. The FAME tool could be used to evaluate the effectiveness of family engagement interventions.

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测量重症监护中的家庭参与：FAME工具的验证

让家庭成员参与重症监护病房（ICU）的患者护理是重症监护学会推荐的做法。然而，目前还没有有效的工具来衡量ICU环境中的家庭参与。本研究的目的是验证ICU的家庭参与（FAME）工具。方法FAME研究是一项多中心前瞻性队列研究，研究对象是加拿大8个ICU的ICU患者家属。患者家属在ICU住院期间填写FAME问卷。FAME问卷包括12个项目，评估了家庭参与行为的各个领域。FAME分数以0-100分的评分系统报告，分数越高表明护理参与程度越高。出院后，我们评估了FAME评分与家庭护理满意度和心理健康（焦虑和抑郁）之间的关系。评估FAME工具的内部一致性（信度）、收敛效度和预测效度。结果家庭成员269人(年龄56.8±15.1岁；68.4%女性)纳入分析。与患者最常见的关系是配偶/伴侣（40.5%）和女儿/儿子（33.8%）。总体平均FAME评分为77.7±14.8分。FAME评分具有较高的内部一致性（Cronbach's α = 0.83），该工具具有收敛效度和预测效度。FAME得分与家庭满意度有关，但与心理健康结果无关。结论FAME工具在多中心ICU队列中具有可靠性、收敛性和预测有效性。FAME工具可用于评估家庭参与干预措施的有效性。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Journal of critical care 医学-危重病医学

CiteScore

8.60

自引率

2.70%

发文量

237

审稿时长

23 days

期刊介绍： The Journal of Critical Care, the official publication of the World Federation of Societies of Intensive and Critical Care Medicine (WFSICCM), is a leading international, peer-reviewed journal providing original research, review articles, tutorials, and invited articles for physicians and allied health professionals involved in treating the critically ill. The Journal aims to improve patient care by furthering understanding of health systems research and its integration into clinical practice. The Journal will include articles which discuss: All aspects of health services research in critical care System based practice in anesthesiology, perioperative and critical care medicine The interface between anesthesiology, critical care medicine and pain Integrating intraoperative management in preparation for postoperative critical care management and recovery Optimizing patient management, i.e., exploring the interface between evidence-based principles or clinical insight into management and care of complex patients The team approach in the OR and ICU System-based research Medical ethics Technology in medicine Seminars discussing current, state of the art, and sometimes controversial topics in anesthesiology, critical care medicine, and professional education Residency Education.