Validating the socio-spiritual items of the Utrecht Symptom Diary-4 Dimensional: Content and construct validity.

IF 3.6 2区 医学 Q1 HEALTH CARE SCIENCES & SERVICES
Palliative Medicine Pub Date : 2025-05-01 Epub Date: 2025-02-28 DOI:10.1177/02692163251321692
Tom Lormans, Everlien de Graaf, Frederieke van der Baan, Carlo Leget, Saskia Teunissen
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引用次数: 0

Abstract

Background: The Utrecht Symptom Diary-4 Dimensional (USD-4D) is a multidimensional Patient-Reported Outcome Measure to monitor symptoms and needs and increase patients' self-efficacy. Assessing the content and construct validity of the USD-4D ensures it accurately measures the intended construct and is contextually relevant.

Aims: This study aimed to assess the content and construct validity of the socio-spiritual items of the USD-4D in a population of Dutch patients in the palliative phase of their illness.

Design: A multiple method study was performed consisting of a cross-sectional survey and an observational cohort study.

Participants: The study population consisted of (a) healthcare providers working with patients in the palliative phase and (b) a cohort of patients with a life limiting illness in all settings supplemented by a cohort of hospice patients.

Results: At least 80% of participants positively assessed the items comprehensibility and relevance. About half of the respondents indicated that certain items are missing from the USD-4D. A qualitative analysis of missing topics revealed either topics for monitoring over time or topics underlying the constructs included. For every item, at least 75% of hypotheses were confirmed. One hypothesis for the item "I can let my loved ones go" was rejected.

Conclusions: This study confirmed the content and construct validity on the socio-spiritual items of the USD-4D. Hence, the USD-4D is a validated PROM suitable to be structurally used in clinical palliative care to signal, monitor and to go into dialogue about social and spiritual aspects of patients' values, wishes, and needs.

验证乌得勒支症状日记的社会精神项目-4维度:内容和结构效度。
背景:乌得勒支症状日记-4维(USD-4D)是一种多维度的患者报告结果测量,用于监测症状和需求,提高患者的自我效能感。评估USD-4D的内容和结构有效性,确保它准确地测量预期的结构,并与上下文相关。目的:本研究旨在评估USD-4D的内容和构建效度的社会精神项目的人群在他们的疾病姑息期的荷兰患者。设计:采用多方法研究,包括横断面调查和观察性队列研究。参与者:研究人群包括(a)与姑息期患者一起工作的医疗保健提供者和(b)在所有环境中患有限制生命疾病的患者队列,并辅以临终关怀患者队列。结果:至少有80%的被试积极评价试题的可理解性和相关性。大约一半的受访者表示,某些项目从美元- 4d丢失。对缺失主题的定性分析揭示了随时间监视的主题或包含的构造的底层主题。对于每个项目,至少有75%的假设被证实。关于“我可以让我爱的人离开”的一个假设被拒绝了。结论:本研究证实了USD-4D社会精神项目的内容和结构效度。因此,USD-4D是一种经过验证的PROM,适合在结构上用于临床姑息治疗,以发出信号,监测并进入关于患者价值观,愿望和需求的社会和精神方面的对话。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
Palliative Medicine
Palliative Medicine 医学-公共卫生、环境卫生与职业卫生
CiteScore
7.60
自引率
9.10%
发文量
125
审稿时长
6-12 weeks
期刊介绍: Palliative Medicine is a highly ranked, peer reviewed scholarly journal dedicated to improving knowledge and clinical practice in the palliative care of patients with far advanced disease. This outstanding journal features editorials, original papers, review articles, case reports, correspondence and book reviews. Essential reading for all members of the palliative care team. This journal is a member of the Committee on Publication Ethics (COPE).
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