A Systematic Review to Explore Antenatal Care From the Perspectives of Women With Intellectual Disabilities and Midwives

IF 1.2 4区医学 Q3 EDUCATION, SPECIAL

British Journal of Learning Disabilities Pub Date : 2024-09-19 DOI:10.1111/bld.12618

Weam Alhulaibi, Janine Stockdale, Paul McAleer

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Abstract

Background

During pregnancy, some women with an intellectual disability encounter some challenges, and some midwives who provide them with support lack the knowledge to provide the best care. This systematic review explores the experiences of women with intellectual disability during pregnancy and midwives' experiences of providing care.

Method

Four databases were searched (PubMed, CINHAL, PsycINFO and Web of Science) and the resultant studies were appraised for quality using CASP. The selected papers were published between January 2012 and December 2022 and originated from the United Kingdom, Sweden, Canada and Ireland.

Results

Eight studies were included: five examined the experiences of pregnant women with intellectual disability, one investigated the midwives' experiences of caring and two analysed both groups. The primary themes amongst women included pregnancy announcements, involvement in their care and fear of losing their baby custody. The midwives expressed their lack of readiness and need for additional support. Both groups recognised the necessity for improved education and accessible communication.

Conclusion

Women with intellectual disabilities who are in the context of this review revealed their requirement for improved education and assistance in understanding antenatal information. The midwives within the included studies felt inadequately prepared to support women with intellectual disabilities: they lacked specialist training and required additional support in health education and communication skills.

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从智障妇女和助产士的角度探讨产前护理的系统综述

在怀孕期间，一些智力残疾妇女遇到了一些挑战，一些为她们提供支持的助产士缺乏提供最佳护理的知识。本系统综述探讨了智力残疾妇女在怀孕期间的经历和助产士提供护理的经历。方法检索PubMed、CINHAL、PsycINFO和Web of Science 4个数据库，采用CASP对结果进行质量评价。入选论文发表时间为2012年1月至2022年12月，分别来自英国、瑞典、加拿大和爱尔兰。结果共纳入8项研究：5项研究考察了智障孕妇的经历，1项研究考察了助产士的护理经历，2项研究对两组进行了分析。妇女的主要主题包括宣布怀孕、参与照顾孩子以及担心失去孩子的监护权。助产士们表示，她们还没有做好准备，需要额外的支持。两组人都认识到改善教育和无障碍交流的必要性。结论本综述所涉及的智力残疾妇女在产前信息方面需要加强教育和帮助。纳入研究的助产士认为，她们在支持智障妇女方面准备不足：她们缺乏专业培训，需要在健康教育和沟通技巧方面获得额外支持。

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来源期刊

British Journal of Learning Disabilities EDUCATION, SPECIAL-

CiteScore

2.30

自引率

20.00%

发文量

期刊介绍： The British Journal of Learning Disabilities is an interdisciplinary international peer-reviewed journal which aims to be the leading journal in the learning disability field. It is the official Journal of the British Institute of Learning Disabilities. It encompasses contemporary debate/s and developments in research, policy and practice that are relevant to the field of learning disabilities. It publishes original refereed papers, regular special issues giving comprehensive coverage to specific subject areas, and especially commissioned keynote reviews on major topics. In addition, there are reviews of books and training materials, and a letters section. The focus of the journal is on practical issues, with current debates and research reports. Topics covered could include, but not be limited to: Current trends in residential and day-care service Inclusion, rehabilitation and quality of life Education and training Historical and inclusive pieces [particularly welcomed are those co-written with people with learning disabilities] Therapies Mental health issues Employment and occupation Recreation and leisure; Ethical issues, advocacy and rights Family and carers Health issues Adoption and fostering Causation and management of specific syndromes Staff training New technology Policy critique and impact.