Preparing for death: a survey on rituals in the dying phase in the Christian context in Germany.

4区 医学 Q2 Nursing
Julia Thiesbonenkamp-Maag, Christina Gerlach, Guido Sprenger, Johannes Eurich, Bernd Alt-Epping
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Abstract

Background: In the majority of cultures, death is accompanied by a series of rituals that assist the bereaved in coping with this significant transition. However, there is a paucity of empirical literature on the organisation of such rituals. The objective of this multidisciplinary study was to collate an inventory of rituals and ritual elements. This data will be employed to develop a repertoire of rituals. The research was conducted in Germany. The participants in the second phase were primarily hospital chaplains. Consequently, the data collected primarily related to rituals anchored in a Christian context.

Methods: We initiated a multidisciplinary research project (palliative medicine, cultural anthropology, theology) on rituals in end-of-life care. The study employed a mixed-methods approach, comprising three phases, and was conducted in Germany. In this paper, we present the results of a survey on professionals conducted using an online questionnaire. The aim was to explore the general understanding, demands, practices and further suggestions from clinical practice (phase 2). The questionnaire consisted of both open and closed questions. It should be noted that the survey did not enquire about the respondents' religious affiliation. The responses to the closed questions were analysed statistically, while the open-ended responses were analysed qualitatively.

Results: A total of 299 questionnaires were completed, primarily by chaplains, nurses, and doctors. The respondents described a wide range of rituals, and across all professions, there was a high to medium perceived need for the use of rituals for patients nearing the end of their lives and their relatives. Rituals at the end of life were found to be highly relevant in terms of providing support and structure, expressing emotions, and experiencing community. The spectrum of rituals extends from established and extensive religious rituals to smaller everyday actions that are elevated to the status of rituals.

Conclusions: As religious traditions are no longer practised by an increasing number of people; it may be reasonable to develop new rituals for the dying phase that can be adapted and used by palliative care staff to suit the respective context. These rituals could make a valuable contribution to the care of the dying, their relatives and the professional team.

准备死亡:德国基督教背景下临终阶段的仪式调查。
背景:在大多数文化中,死亡伴随着一系列的仪式,以帮助失去亲人的人应对这一重要的转变。然而,关于这种仪式组织的经验文献很少。这项多学科研究的目的是整理一份仪式和仪式元素的清单。这些数据将被用来发展一系列的仪式。这项研究在德国进行。第二阶段的参与者主要是医院的牧师。因此,收集的数据主要与基督教背景下的仪式有关。方法:我们发起了一项多学科研究项目(姑息医学、文化人类学、神学),研究临终关怀中的仪式。该研究采用混合方法,包括三个阶段,并在德国进行。在本文中,我们提出了一项使用在线问卷对专业人士进行调查的结果。目的是探讨临床实践的一般认识、需求、做法和进一步的建议(阶段2)。问卷由开放式和封闭式问题组成。值得注意的是,这项调查并没有询问受访者的宗教信仰。对封闭式问题的回答进行统计分析,对开放式问题的回答进行定性分析。结果:共完成问卷299份,问卷主要由牧师、护士和医生填写。受访者描述了各种各样的仪式,在所有职业中,对接近生命终点的患者及其亲属使用仪式的感知需求很高。研究发现,生命末期的仪式在提供支持和结构、表达情感和体验社区方面具有高度相关性。仪式的范围从既定的和广泛的宗教仪式延伸到被提升到仪式地位的较小的日常行为。结论:随着越来越多的人不再实践宗教传统;为临终阶段制定新的仪式可能是合理的,可以由姑息治疗人员适应和使用,以适应各自的情况。这些仪式可以为照顾临终者、他们的亲属和专业团队做出宝贵的贡献。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
Annals of palliative medicine
Annals of palliative medicine Medicine-Anesthesiology and Pain Medicine
自引率
0.00%
发文量
231
期刊介绍: Annals of Palliative Medicine (Ann Palliat Med; Print ISSN 2224-5820; Online ISSN 2224-5839) is an open access, international, peer-reviewed journal published quarterly with both online and printed copies since 2012. The aim of the journal is to provide up-to-date and cutting-edge information and professional support for health care providers in palliative medicine disciplines to improve the quality of life for patients and their families and caregivers.
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