Outcome measures in muscular dystrophy rehabilitation: an ICF content comparison approach to the most commonly used MD scales.

IF 2.5 4区医学 Q1 REHABILITATION

Journal of Rehabilitation Medicine Pub Date : 2025-01-31 DOI:10.2340/jrm.v57.40327

Mihaela Taranu, Raquel Sebio-García, José C Milisenda, Aida Alejaldre, Xavier Pastor, Sarah Laxe

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引用次数: 0

Abstract

Introduction: Functioning is the reason to be of rehabilitation as it is essential to the lives of people who suffer from a disease. The International Classification of Functioning, Disability and Health (ICF) can help in designing a functioning profile of a patient, identifying needs for rehabilitation plans and measuring the results of an intervention.

Objective: To identify the outcome measurement instruments reported in clinical studies in muscular dystrophies (MDs) and provide an ICF content analysis.

Method: A systematic literature review was conducted until October 2022, using Medline, PubMed, and Scopus databases. Papers assessing outcomes related to functioning in patients with MDs were included.

Results: A total of 116 papers were included and all identified outcome measures were linked to the ICF. Inter-researcher agreement for the linking process was 0.82. The analysed instruments focused mainly on aspects of body functions, followed by activities and participation. General scales were more comprehensive than specific.

Conclusions: The application of ICF in this research enhances the understanding of functioning of patients with MDs and the need to develop more specific but comprehensive scales tailored to the needs of MD patients, and can guide clinicians in a assessing patients through a biopsychosocial perspective.

查看原文本刊更多论文

肌萎缩症康复的结果测量：最常用的MD量表的ICF内容比较方法。

功能是康复的理由，因为它对患有疾病的人的生活至关重要。国际功能、残疾和健康分类（ICF）有助于设计病人的功能概况，确定康复计划的需要和衡量干预措施的结果。目的：确定肌营养不良症（md）临床研究中报道的结果测量仪器，并提供ICF含量分析。方法：使用Medline、PubMed和Scopus数据库进行系统文献综述，直至2022年10月。纳入了评估MDs患者功能相关结果的论文。结果：共纳入116篇论文，所有确定的结果指标均与ICF相关。研究者间对链接过程的认同度为0.82。分析的工具主要集中在身体功能方面，其次是活动和参与。一般量表更全面而不是具体。结论：ICF在本研究中的应用增强了对MD患者功能的理解，以及根据MD患者的需求制定更具体、更全面的量表的必要性，可以从生物心理社会角度指导临床医生对患者进行评估。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Journal of Rehabilitation Medicine 医学-康复医学

CiteScore

5.60

自引率

5.70%

发文量

102

审稿时长

4-8 weeks

期刊介绍： Journal of Rehabilitation Medicine is an international peer-review journal published in English, with at least 10 issues published per year. Original articles, reviews, case reports, short communications, special reports and letters to the editor are published, as also are editorials and book reviews. The journal strives to provide its readers with a variety of topics, including: functional assessment and intervention studies, clinical studies in various patient groups, methodology in physical and rehabilitation medicine, epidemiological studies on disabling conditions and reports on vocational and sociomedical aspects of rehabilitation.