Assessment of biobank awareness among medical students in Iran.

IF 1.5 Q4 GENETICS & HEREDITY

Journal of Community Genetics Pub Date : 2025-01-21 DOI:10.1007/s12687-025-00769-4

Jan Domaradzki, Reza Jahanshahi, Marcin Piotr Walkowiak, Dariusz Walkowiak

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引用次数: 0

Abstract

Background: Despite the rise of research biobanks in the Middle East, they continue to struggle with the limited number of donors. Although qualified healthcare professionals may address it, the awareness of biobanks among future physicians is low. This paper assesses the attitudes towards research biobanks among Iranian medical students.

Methods: 459 medical students completed an anonymous self-administered online questionnaire regarding the knowledge and attitudes of future physicians towards biobanking.

Results: This study demonstrates that almost half of the students had not heard about biobanks, and one-third had mixed feelings about biobank research. The majority declared a willingness to share their biological material for biobank research and declared altruistic motivation. Students' willingness to donate was influenced by the type of tissues, the purpose of biobank research and trust in biobanks, which influenced their preference for a study-specific consent model. Students expressed concern over biospecimens' unethical or commercial use and data safety.

Conclusion: This research shows that promoting knowledge about biobank-based research among future physicians in Iran is crucial.

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伊朗医科学生对生物银行意识的评估。

背景：尽管研究生物银行在中东兴起，但它们仍在与有限的供体数量作斗争。虽然合格的医疗保健专业人员可能会解决这个问题，但未来医生对生物银行的认识很低。本文评估了伊朗医学生对研究生物银行的态度。方法：459名医学生填写了一份关于未来医生对生物银行的知识和态度的匿名在线问卷。结果：这项研究表明，几乎一半的学生没有听说过生物银行，三分之一的学生对生物银行的研究有复杂的感觉。大多数人表示愿意为生物银行的研究分享他们的生物材料，并表示他们是出于利他的动机。学生的捐赠意愿受到组织类型、生物库研究目的和对生物库的信任的影响，这影响了他们对特定研究同意模式的偏好。学生们对生物标本的不道德或商业用途以及数据安全表示担忧。结论：这项研究表明，在伊朗未来的医生中推广基于生物库的研究知识至关重要。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Journal of Community Genetics GENETICS & HEREDITY-

CiteScore

3.30

自引率

5.30%

发文量

期刊介绍： The Journal of Community Genetics is an international forum for research in the ever-expanding field of community genetics, the art and science of applying medical genetics to human communities for the benefit of their individuals. Community genetics comprises all activities which identify persons at increased genetic risk and has an interest in assessing this risk, in order to enable those at risk to make informed decisions. Community genetics services thus encompass such activities as genetic screening, registration of genetic conditions in the population, routine preconceptional and prenatal genetic consultations, public education on genetic issues, and public debate on related ethical issues. The Journal of Community Genetics has a multidisciplinary scope. It covers medical genetics, epidemiology, genetics in primary care, public health aspects of genetics, and ethical, legal, social and economic issues. Its intention is to serve as a forum for community genetics worldwide, with a focus on low- and middle-income countries. The journal features original research papers, reviews, short communications, program reports, news, and correspondence. Program reports describe illustrative projects in the field of community genetics, e.g., design and progress of an educational program or the protocol and achievement of a gene bank. Case reports describing individual patients are not accepted.